By: Stephanie Holland Guardianship is one of the biggest issues that parents of children who have intellectual or developmental disabilities (ID/DD) face. The discussion usually starts in IEP meetings when students start planning for “transition” from school to adult services. For a…
read moreBy: Stephanie Holland So, you’ve gone through the process of getting guardianship of your adult child. What happens if your family moves out of state ? The answer to that question may depend on the states involved. The Uniform Adult Guardianship and Protective…
read moreOriginally posted by Mardra of Grown Ups & Downs 1/15/2014 Yup folks, there it is, the 18 pages I have to complete within the next week. Sure, “the state” mailed them to me postmarked Dec 12th, but you see, to get the…
read moreHappy WDSD to all our friends with Down syndrome and their families! We’ve been quiet for a while now, but we’ve been working behind the scenes. This year we’ve been updating our literature lists and planning to cover new books in our…
read moreAnother way people learn about Down syndrome is through literature. We’ll talk about memoires later in the month. Today, let’s talk about fiction. Down syndrome in children’s literature is an area that I talk a lot about- but today I want to…
read more<!doctype html> Storyclub Join! Research Corner Knowledge is power. Learn Ethan Saylor Ethan Saylor’s legacy. More Story Club Come read with us! The Story Club at The Road We’ve Shared allows parents and…
read moreAUDIENCES: Our main audience consists of parents and caregivers of adults who have Down syndrome. This includes siblings as well as professional caregivers. Parents of children who have Down syndrome are also interested in learning about our experiences. Professionals such as lawyers,…
read more“Am I my brother’s keeper?” or “He ain’t heavy, he’s my brother.”
read moreOne of life’s milestones, something we all see as a normal life goal, is sometimes just out of reach for some of our adult children with Down syndrome. Marriage represents opportunities for advocacy in two different areas: the personal and the public.
read moreOf all the tools a good advocate needs, information is the most important.
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