All posts by Stephanie

Meet Rion!

Since we first met Rion in 2014 he has graduated from Crimson Life and now has a job, with competitive pay, a great group of friends and he lives life to the fullest!

Originally posted 10/29/14

Meet Rion!

Rion is 20 years old and attends Clemson University at part of the Clemson LIFE program.  Like other college freshmen, he lives in a campus dorm and enjoys socializing with other college students as well as attending the football games.  In addition to taking literacy, math, technology, and cooking classes, Rion enjoys his bowling and equine classes, working out every day in the gym, and volunteering as an assistant with a children’s soccer league.  A busy guy!  Next semester Rion will begin an internship.  He has worked as a busboy at Paul’s Wood-fired Burgers in Roebuck, SC.
What stands out the most about Rion is his giving nature.  He will do anything for those in need whether it is helping the elderly or giving care to the sick.  Rion is a quiet, low key guy.  He likes staying behind the scenes, cheering others on and giving assistance however needed.

Rion’s favorites:

Music – Country (Blake Shelton and Rascal Flatts)

Favorite song:  Life is a Highway, The Boys ‘Round Here

Movie – Jack Frost, Shrek, comedies and musicals

TV show – Glee and Austin and Ally

Sports he plays:  swimming, baseball, bowling, basketball

Favorite pastimes:  singing karaoke, spending time at the pool with friends, boating and tubing on the lake, spending time with family

Favorite food:  sub sandwiches

Favorite team:  Clemson Tigers

Best thing about college:  meeting cute girls and being with friends

Favorite memory:  Getting invited to the Orange Bowl by the Orange Bowl Committee and Danielle Bradbury (The Voice winner)

Rion on The Road We've Shared for Down syndrome Awareness month

New Cancer Screening Suggestions for People With Down Syndrome

A group of scientists headed by Dr. Marie-OdileRethoré from the Institut Jérôme Lejeune, recently published a new proposal for cancer screening guidelines for the Ds community.

Based on the fact that people with Ds are affected by cancer differently than those without – for example they get solid tumors half as much – these doctors suggest changing the way doctors perform cancer screening tests.

The specific tumor profile in DS warrants an adapted screening program for breast, colon, cervical and testicular neoplasia.

  • “We propose that adults with DS should participate in colon cancer screening.
  • For women with DS, breast cancer screening is not recommended, but annual clinical monitoring should be conducted, with the option to perform ultrasound or MRI examination in suspect cases.
  • For cervical cancer, screening could be proposed to women who are sexually active beginning at age 25 years.
  • Annual surveillance for testicular cancer via palpation by a health professional is preferable from ages 15 to 45.
  • In case of additional genetic predisposition in a person with DS, a surveillance similar to other family members is recommended.”

 

Meet Joey!

We are saddened that Joey is now dealing with dementia. However, his sister Marianne reports:  “His health is fabulous and he is so happy!” Our prayers are with Joe and his family.

Visit them on Joey’s Ups with Downs.

Originally posted 10/22/14

Meet Joey

Joey Solinsky, the oldest of six children, has Down syndrome. He works in a local barbershop sweeping hair and enjoys a massage every other week. Joey lives in a group home. His interests include watching old TV shows, listening to his radio on his headphones and writing his calendars.

It is hard not to smile when Joey is around.

Joey Solinsky