By: Stephanie Holland “Down Syndrome Directions: The National Institutes of Health Research Plan on Down Syndrome” was recently published. The new 71-page plan updates the 2007 version and spells out the research priorities for the immediate and long-term future.I spent some time reading…
read moreResearch summary by Stephanie Holland Lack of yearly physical exams / limited access to care: Research suggests (1) that primary care physicians may be able to respond to complaints, but may not be completing much needed preventative medicine options. Some doctors…
read moreBy Stephanie Holland As we say goodbye to Down syndrome Awareness Month, I’d like to personally thank all those who participated and helped us with our efforts! We managed to finish strong on the 21 for 31 blog challenge and we had so many…
read moreWe’re all about sharing stories here on The Road, so it’s only natural that we’d start a book club – and call it a story club. There have been some great memoirs published over the years, and reading…
read moreVivian is 20 years old and counting the days (literally) until December 21 when she turns 21. She is in a program called TRACE through the public schools and is currently working 2 jobs. She volunteers at a…
read moreRion is 20 years old and attends Clemson University at part of the Clemson LIFE program. Like other college freshmen, he lives in a campus dorm and enjoys socializing with other college students as well as attending the…
read moreHave you heard of “Sam’s Secret Journal” ? The three book series was featured in a recent article on “The Mighty.” The books are based on a real young woman who we’ve met here on The Road before. She’s also been featured…
read moreBy Stephanie Holland Down syndrome research is one those topics that divides our community. Some feel strongly that research can provide answers to medical questions and new drug therapies are necessary to improve cognition. Others point to the less than ethical tests…
read moreMarianne is sister and long time co-guardian to her oldest brother, Joey who has Down Syndrome. She recently authored a children book called Will YOU Be My Friend? A book about teaching children we are more alike than different with her brother…
read moreHey world! It’s time you met Beth. Beth is 30 years old, just. She just had a birthday and what a party weekend it was! Beth’s mom Cindy gives the “short version” here: “Beth is the oldest of our three girls. She…
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