One of life’s milestones, something we all see as a normal life goal, is sometimes just out of reach for some of our adult children with Down syndrome. Marriage represents opportunities for advocacy in two different areas: the personal and the public.Continue reading April A to Z Blogging Challenge: Marriage→
We hope you’ve enjoyed our series on employment for people who have Down syndrome! For our final post, we bring you some encouraging stories and zestful employment data that we hope will encourage those looking to support a loved one who’s looking for a job.
Today’s film is a difficult watch. It touches on an aspect of our past and present that we don’t talk about much – what happens when elderly parent caregivers get sick and there is no plan in place for their adult children.
There is no shortage of opportunities for us to help create change in our world today. We all have our reasons for why we choose to support (or not) a particular issue. When it comes to advocacy, we are usually motivated by causes we identify with. If we can picture ourselves or our loved ones being affected by a certain problem, we’re more likely to invest our own time and energy to fix it. What about the issues that we don’t allow ourselves to connect with? Who fights to fix the problems most of us just don’t want to acknowledge?
In our capitalist economy, our children with Down syndrome are seen by some as less than – not able to be “contributing” members of society.
So we fight.
We fight language in an effort to change perceptions. We fight against the “R” word because it demeans our loved one. We fight for person-first language in hopes that it will somehow convince people to care. We hope with all our being that saying our child is “a person who has Down syndrome” instead of “Down’s Syndrome child” will help society see the person before the label. Lately, we’ve even started using the phrase “happens to have Down syndrome,” perhaps hoping that people will see this person we love with all our hearts as we do – a human being – and not a drain on society at best, someone who should not have been born at worst. We cling to phrases like “More alike than different,” because we feel the only way to create change is to convince society that people with Down syndrome aren’t so odd that they should be made fun of, or worse yet, ignored.