There is no shortage of opportunities for us to help create change in our world today. We all have our reasons for why we choose to support (or not) a particular issue. When it comes to advocacy, we are usually motivated by…
read moreIn our capitalist economy, our children with Down syndrome are seen by some as less than – not able to be “contributing” members of society. So we fight. We fight language in an effort to change perceptions. We fight against the “R”…
read moreThe following is a list of excerpts from Health and Health Care Disparities Among People with Disabilities Disability Rights Education & Defense Fund Follow them on Facebook and Twitter “While disability affects people of all races, ethnicities, genders, languages, sexual orientations, and…
read moreImagine Imagine it, someone else makes all of your decisions: where you live, who you live with, and what your daily routine entails. This person might be a family member, but in most cases everything from the choices available to you to…
read moreBy: Stephanie Holland Usually the private and public sector operate on extremely different levels with different agendas. Private companies are guided by the bottom line (for profit) or their mission and board (non-profit). Government entities function within a larger bureaucracy, bound by…
read moreby Kristen McKiernan of The Arc The Arc is the largest organization in the country advocating for and serving people with intellectual and developmental disabilities (I/DD), including Down syndrome. We have a rich 60 year history of advocacy and grassroots organizing that continues…
read moreBy: Eliana Peck and Stephanie Holland Justice is something of a hot topic lately. News reports of another person with a disability being mistreated or lost in the system seem to appear daily. One organization that focuses solely on finding justice for our…
read moreBy: Stephanie Holland ***Update by Sujata Bardhan, Ph.D., Scientific Program Manager, DS-Connect Registry Coordinator One great example of how the community comes together for the greater good is the collaboration that has happened to create the Down syndrome registry. The funding comes from NIH’s Eunice…
read moreIn business there is a mantra among entrepreneurs: “Find a need and fill it.” Karen Bowersox didn’t realize there was such a need as special clothes for people with Down syndrome, or even know that she was an entrepreneur until she tried to find clothes for…
read more*Today’s post is by our Guest, Pamela Arnoldson HI! My name is Pamela Arnoldson, I am a director for Buddy Cruise Inc. I was asked by a member of your community, Mardra, to compose a blog this month. I am honored and I have…
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