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The Road We've Shared

The Road We've Shared

The online community by and for parents and caregivers of adults who have Down syndrome

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Would You or Your Loved One Want a Cure for Down syndrome?
Featured Research

Would You or Your Loved One Want a Cure for Down syndrome?

By Stephanie
On January 10, 2020March 21, 2020

A new study published in the American Journal on Intellectual  and Developmental Disabilities asks parents how they feel about methods of mitigating or preventing symptoms of Down syndrome.

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#cure#research
New Research Funding Supports ONE Study Aimed At Racial Disparities
Featured National Down Syndrome Awareness Month 2019 Racial disparities Research

New Research Funding Supports ONE Study Aimed At Racial Disparities

By Stephanie
On October 14, 2019March 21, 2020

New INCLUDE funding helps (in a round-about way) address racial health disparities in the Down syndrome community.

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#disparities#race#research
A to Z Blogging Challenge: Vulnerability
A to Z Blogging Challenge 2019 Advocacy Featured Legal Issues Resources

A to Z Blogging Challenge: Vulnerability

By Stephanie
On April 25, 2019March 21, 2020

“Individuals with I/DD are significantly more likely to be victimized (at least two times more likely for violent crimes and four to ten times for abuse and other crimes)…,”

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#abuse#court#law#NCCJD#police
B is for Black Day Band – A to Z Blogging Challenge
A to Z Blogging Challenge 2016 Featured

B is for Black Day Band – A to Z Blogging Challenge

By Mardra Sikora
On April 2, 2016March 21, 2020

Marcus Sikora, a young man with Down syndrome is the lead vocalist and co-writer of this song, “We are the Band (Black Day!)” which was inspired by/written with his book, Black Day: The Monster Rock Band. Marcus and Quinn Sikora co-wrote the…

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My Top 15 Moments of Born This Way Season 1
Advocacy Down syndrome in the media Featured

My Top 15 Moments of Born This Way Season 1

By Stephanie
On January 18, 2016March 21, 2020

I watched the first six episodes of Born This Way with excitement. In Season 1, there were so many great moments, teachable moments, moments that made me laugh, cry, and feel grateful to be part of this amazing community that we belong to. Here’s…

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##BornThisWay
Health in Adults who have Down syndrome – 5 Areas of Concern
Aging Featured Health Research

Health in Adults who have Down syndrome – 5 Areas of Concern

By Stephanie
On November 4, 2014March 21, 2020

  Research summary by Stephanie Holland Lack of yearly physical exams / limited access to care: Research suggests (1) that primary care physicians may be able to respond to complaints, but may not be completing much needed preventative medicine options.  Some doctors…

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  • A to Z Blogging Challenge – Down Syndrome in the Media – Quotes
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  • A to Z Blogging Challenge – Down Syndrome in the Media – Celeste Osterman
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