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The Road We've Shared

The Road We've Shared

The online community by and for parents and caregivers of adults who have Down syndrome

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Category: Guest posts

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Q is for Quittin’ Time – A to Z Blogging Challenge
A to Z Blogging Challenge 2016 Guest posts

Q is for Quittin’ Time – A to Z Blogging Challenge

By Stephanie
On April 20, 2016May 1, 2016

Today we have a guest post from Katie, the author of For Elysium blog. Thank you Katie for joining us on The Road! Music has an undeniable influence on memory, as significant moments in our lives are connected to the music we listened…

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P is for Precious – A to Z Challenge
A to Z Blogging Challenge 2016 Guest posts

P is for Precious – A to Z Challenge

By Mardra Sikora
On April 19, 2016May 1, 2016

Guest Blog from Downs Side Up The Power of a Song I recently began thinking about a song by Depeche Mode that was on a compilation CD in my car at the time I was pregnant with Natty. Just another track, probably…

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#art#birth story#Downs Side Up#music
A to Z Blogging Challenge 2015 Guest posts

U – United Nations

By Stephanie
On April 26, 2015July 23, 2015

By Susan Adelman In its essence the United Nations (UN) is a family, a family of nations. And at the heart of its millennial missions is the family. As a result, for 2015 an emphasis on the family motivated the UN to…

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#Devon#United Nations#WDSD
A to Z Blogging Challenge 2015 Down syndrome organizations Guest posts

R – Ruby’s Rainbow – Help From Our Friends

By Stephanie
On April 21, 2015July 23, 2015

By: Liz Plachta – Co-founder of Ruby’s Rainbow “Together we can do so much.” That should be the Ruby’s Rainbow mantra. In fact, in thank you’s, Facebook post and everything in between I have many times used the quote from Helen Keller…

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#scholarships#secondary education
A to Z Blogging Challenge 2015 Down syndrome organizations Guest posts

Quality of Life – Global Down Syndrome Foundation

By Stephanie
On April 20, 2015July 23, 2015

by Michael Bryant of Global Down Syndrome Foundation with a few notes by Mardra Sikora “Learn from yesterday, live for today, hope for tomorrow.” – Albert Einstein As recently as 1983, a person with Down syndrome was barely expected to live into…

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A to Z Blogging Challenge 2015 Down syndrome organizations Guest posts

P is for Phoenix – NDSC

By Stephanie
On April 20, 2015July 23, 2015

P is also for “people” and “professionals” By Sue Joe of the National Down Syndrome Congress Phoenix is the host city for his year’s NDSC Convention in June, and it’s where we’ll be bringing together people (that’s you!) and professionals in the…

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A to Z Blogging Challenge 2015 Disability Services Guest posts

O for Organizing  – The Arc US

By Stephanie
On April 19, 2015July 23, 2015

by Kristen McKiernan of The Arc The Arc is the largest organization in the country advocating for and serving people with intellectual and developmental disabilities (I/DD), including Down syndrome. We have a rich 60 year history of advocacy and grassroots organizing that continues…

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#advocacy
A to Z Blogging Challenge 2015 Down syndrome organizations Guest posts

M is for Mosaic Down Syndrome

By Stephanie
On April 18, 2015July 23, 2015

By: Brandy Snow and Stephanie Holland Have you heard of Mosaic Down syndrome but wondered what it was or how different it is from Trisomy 21?Has some one asked you if you can have “a little bit” of Down syndrome? We learned about…

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#Mosaic Down Syndrome
A to Z Blogging Challenge 2015 Down syndrome organizations Guest posts

Local!

By Stephanie
On April 14, 2015July 23, 2015

Everything Starts at Home  This week there is the Buddy Walk on Washington.  Big things are being done on the big stage.  But, what’s happening at home in your town? The local groups have their feet on the ground, working for the…

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#Mardra Sikora
A to Z Blogging Challenge 2015 Disability Services Ethan's Law Guest posts

Justice for All

By Stephanie
On April 11, 2015July 24, 2015

By: Eliana Peck and Stephanie Holland  Justice is something of a hot topic lately.  News reports of another person with a disability being mistreated or lost in the system seem to appear daily. One organization that focuses solely on finding justice for our…

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#criminal justice#legal

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  • New Study: Detecting sleep apnea in adults with Down syndrome using WatchPAT
  • Unwanted: How a Mother Learned to Turn Shame, Grief, and Fear into Purpose, Passion, and Empowerment – A to Z Blogging Challenge
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  • Home
  • About Us
    • Strategic Planning
  • Justice For Ethan
    • The Civil Case – A Summary
    • Press Release – Ethan Saylor Memorial Film Festival
    • Ethan’s Law – The Movie
    • A Brief Summary of the Story
  • Blog
  • Count Us In!
    • Research: Why Does it Matter to You and Your Families?
  • Research Corner
    • Stress and Depression Linked to Onset of Cognitive Decline and Alzheimer’s Disease in People with Down Syndrome
    • Alzheimer’s Disease – Dr. Brian Chicoine
    • Health & Aging with Down syndrome
    • Vaccine targeting AD with Down syndrome
    • Debate Over Antidementia Drugs
    • All about the Down syndrome registry
  • Down Syndrome in Children’s Literature
    • Children’s Library