Has your son who’s 5’ 4” (or shorter) told you that he’s going to be an NBA player? Has your beautiful daughter who has weak ankles and knees spoken to you about her dream of becoming a prima ballerina? Does your son who has absolutely NO rhythm and can’t carry a tune in a bucket proclaimed himself to be a bona fide rock star?
That last one is mine. My son has identified himself as a rock star since he was a toddler. I’ve decided to go along with the dream even though I cringe a little every time he sings. That’s what moms are for – to help their children do whatever it takes, within reason, to achieve their goals. He’s also demanded at different times that he’s going to be president, the King of bowling, and a WWE superstar. I agree enough to give him self-confidence but we both know none of those things are likely to happen.
It’s one thing when the dreams children dream aren’t feasible because their bodies just aren’t built that way. Not everyone can be a professional athlete or leader of the free world. [Not going there but wouldn’t it be nice if someone with Down syndrome ruled the world.]
But what about when the dream is physically possible, but not “socially acceptable?” Continue reading I Can Be a Father (With Down Syndrome)
The news story
A terrible story hit the news recently. It involved a young man who had Down syndrome who died after receiving dental care. The family of the man has been waiting for justice for four years.
We see too many stories like these: ones involving innocents who die at the hands of people in power who we trust with our loved ones. These stories make us wonder if we are doing all we can to protect our loved ones and the rest of our community. Continue reading All About Dental Care: Death, Research and Advocacy
Today’s advocates are grateful for those who came before us.
Continue reading A to Z Blogging Challenge: Yesteryear
Advocacy aimed directly at obstetricians is common in the Down syndrome community. As the point of first contact between families and Down syndrome, how they see the condition is critical. Continue reading April A to Z Blogging Challenge: Obstetrician
One of life’s milestones, something we all see as a normal life goal, is sometimes just out of reach for some of our adult children with Down syndrome. Marriage represents opportunities for advocacy in two different areas: the personal and the public. Continue reading April A to Z Blogging Challenge: Marriage
Perhaps our first taste of advocacy happens when we choose to tell our friends and family that our child has Down syndrome. Continue reading April A to Z Blogging Challenge: Friends and Family
One of the most important things we, as parents, can do for our children is allow them the space to make their own mistakes.
Continue reading April A to Z Blogging Challenge: Dignity of Risk
I is for inclusion. Today we thank Sandra McElwee, author and now famous, mother of Sean from Born This Way on A&E.
Continue reading Inclusion – As Told By Sandra McElwee
Today we’re talking about one of our “Awareness Partners” at The Mall – the great new(ish) book by Jen Jacobs and Mardra Sikora – The Parent’s Guide to Down Syndrome.
Continue reading The Parent’s Guide to Down Syndrome
I turned 50 this week. Along with that milestone came what I imagine are the typical feelings that people feel when marking a half-century. I felt nostalgic for the time that has passed and wondered how I could have possibly gotten this far without accomplishing so many of my goals. I felt somewhat daunted by the ever decreasing amount of time I have left. I made lists of goals and counted my blessings. It wasn’t about cake and ice cream. It’s serious business this golden jubilee. Continue reading Aging with Down syndrome