One of life’s milestones, something we all see as a normal life goal, is sometimes just out of reach for some of our adult children with Down syndrome. Marriage represents opportunities for advocacy in two different areas: the personal and the public.Continue reading April A to Z Blogging Challenge: Marriage→
I turned 50 this week. Along with that milestone came what I imagine are the typical feelings that people feel when marking a half-century. I felt nostalgic for the time that has passed and wondered how I could have possibly gotten this far without accomplishing so many of my goals. I felt somewhat daunted by the ever decreasing amount of time I have left. I made lists of goals and counted my blessings. It wasn’t about cake and ice cream. It’s serious business this golden jubilee. Continue reading Aging with Down syndrome→
This week has been a very big one for fans of Born This Way on A&E. The show continues to break new ground and prove that Hollywood just might learn a thing or two from people with disabilities – and their families.
What kinds of people do you admire? Is there a particular quality that you look for in a hero? What do you think qualifies as inspirational? For me there are many different kinds of heroes out there, mostly people who think of others more than themselves. Lately I’ve been thinking a lot about the kinds of parents I admire and why.
My son Joshua has two “brothers by another mother” who he loves dearly. This picture was taken at the celebration / vow renewal of his youngest brother (left), Today, the middle brother, (right) got married .
Josh recorded a short message for his brother that included “Good job bro,” and “I love you.” As soon as I stopped the recording, he declared: “End of message!” (Phew! I was worried there for a minute. He can go on and on when he’s on a roll.) Then, he watched the video to make sure it was worthy of sharing. “Yeah, that’s good” he said with a smile of approval. As I fumbled with my phone trying to figure out how to get the video somewhere where the groom could see it, he added “I had a tear in my eye.” Continue reading “Not Me” – When My Son With Down Syndrome Feels Left Behind→
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