Research – The Road We've Shared

New Study Looks at Comorbid Conditions for Patients with Down Syndrome

Team headed by Dr. Brian Chicoine from the Adult Down Syndrome Center in Park Ridge, IL, reviewed records from “up to 28 years of data, compiled from 6078 individuals with DS” and a similar group without Ds, to determine what conditions are more prevalent in the Ds population.

#health

A to Z Blogging Challenge – Down Syndrome in the Media – Advocacy

By Stephanie

On April 1, 2021April 1, 2021

We start off our month-long look at Down syndrome in the media by mentioning the advocacy that is happening in this area. Disability groups of all types are busy addressing problems of underrepresentation and negative stereotypes that are prevalent in our films,…

##AprilAtoZ##AtoZChallenge#disability representation#media#television

Stress and Depression Linked to Onset of Cognitive Decline and Alzheimer’s Disease in People with Down Syndrome

By Stephanie

On February 9, 2021February 9, 2021

Researchers, including clinicians from the Jérôme Lejeune Institute and the University of Chicago, recently published a paper on the possibility of a link between stress and the onset of dementia in patients with Down syndrome (Ds).

#Alzheimer's disease#Depression#PTSD#Stress

Do adults with Down syndrome get adequate medical care?

By Stephanie

On November 6, 2020November 6, 2020

A recent study from Sweden looks at whether adults with Down syndrome adhere to medical guidelines. Specific medical guidelines for health surveillance exist for people with Down syndrome (DS) since 25 years but knowledge of adherence to the guidelines is lacking. The guidelines…

#caregiving#medical care#Medical guidelines

Turkish Study on Food and Nutrition

By Stephanie

On May 25, 2020

A recent study from Turkey examined the eating habits of 20 people who have Down syndrome. Even though the study represents a different culture, it is always interesting to learn from any information that exists, especially when it comes to adults with…

#eating habits#food#health#nutrition#research#Turkey

Research Corner: “Rates, causes, place and predictors of mortality”

By Stephanie

On May 21, 2020May 21, 2020

This new research study looks at the causes of death for people with intellectual disabilities and specifically adults with Down syndrome. Important facts: “for Down syndrome adults ‘Down syndrome’,and dementia were most common.” [cause of death] [people with intellectual disabilities] “die younger,…

#death#health#research

Measuring Relationships – Caregivers and Adults with Down Syndrome

By Stephanie

On April 20, 2020

How would your loved one describe his social network? Would you name the same people? Research suggests that we, as parents, consider those who have something to give our loved ones as better friends.

#caregiving#friendships#relationships#research#social networks