Category Archives: Research

More Choices: Let Your Voice Be Heard

We’ve talked about sub-minimum wages and the debate surrounding so called “sheltered workshops” several times. We settled on a position that acknowledges the needs of adults with Down syndrome and their caregivers:

More Choices

The good news is that there is a new online information gathering tool sponsored by the U.S. Department of Labor.

It’s called the Section 14(c) National Online Dialogue.

The website includes basic information about the rule that allows some employers to pay sum-minimum wages.


Section 14(c) of the Fair Labor Standards Act

Since 1938, Section 14(c) of the Fair Labor Standards Act has authorized employers, after receiving a certificate from WHD, to pay wages that are less than the Federal minimum wage to workers who have disabilities for the work being performed.

Employers must have an authorizing certificate from the Wage and Hour Division of the U.S. Department of Labor and pay is based on individual productivity.


The site is open to all stakeholders including “individuals with disabilities, their families, providers, disability organizations, employers, researchers, and other(s).

“The goal of this online dialogue is to capture perspectives about Section 14(c) based on individual input from those “on the ground.”

Once you have registered you can give feedback in one or all of the three topics.

  • Use of Section 14(c) certificates and observed trends
  • Experiences transitioning from the use of Section 14(c) certificates
  • Vision for the future of work and workplaces; the landscape over the next five to ten years

We hope all families who have experience with this type of employment will step up and let their voices be heard about the benefit of having more choices when it comes to employment.

Visit the online dialog at http://bit.ly/AboutChoice

The site opened Monday, May 20th. We’d love to hear about your experience with the site!

#MoreChoices #UseYourVoice #BeHeard

 

I Can Be a Father (With Down Syndrome)

Has your son who’s 5’ 4” (or shorter) told you that he’s going to be an NBA player? Has your beautiful daughter who has weak ankles and knees spoken to you about her dream of becoming a prima ballerina? Does your son who has absolutely NO rhythm and can’t carry a tune in a bucket proclaimed himself to be a bona fide rock star?

That last one is mine. My son has identified himself as a rock star since he was a toddler. I’ve decided to go along with the dream even though I cringe a little every time he sings. That’s what moms are for – to help their children do whatever it takes, within reason, to achieve their goals. He’s also demanded at different times that he’s going to be president, the King of bowling, and a WWE superstar. I agree enough to give him self-confidence but we both know none of those things are likely to happen.

It’s one thing when the dreams children dream aren’t feasible because their bodies just aren’t built that way. Not everyone can be a professional athlete or leader of the free world. [Not going there but wouldn’t it be nice if someone with Down syndrome ruled the world.]

But what about when the dream is physically possible, but not “socially acceptable?” Continue reading I Can Be a Father (With Down Syndrome)

All About Dental Care: Death, Research and Advocacy

The news story

A terrible story hit the news recently. It involved a young man who had Down syndrome who died after receiving dental care. The family of the man has been waiting for justice for four years.

We see too many stories like these: ones involving innocents who die at the hands of people in power who we trust with our loved ones. These stories make us wonder if we are doing all we can to protect our loved ones and the rest of our community. Continue reading All About Dental Care: Death, Research and Advocacy

Debate Over Study on Antidementia Drugs for Adults with Down Syndrome and Alzheimer’s Disease

In March 2018, 21 researchers published a study in the British Journal of Psychiatry called “Impact of cholinesterase inhibitors or memantine on survival in adults with Down syndrome and dementia: clinical cohort study.”

Aims: To investigate the effect of cholinesterase inhibitors or memantine on survival and function in adults with Down syndrome and Alzheimer's disease.The researchers noted that there have been few studies conducted, and therefore little information is available on how to treat adults with Down syndrome and Alzheimer’s disease. They set out to test specific antidementia drugs on people with Down syndrome and Alzheimer’s disease. Continue reading Debate Over Study on Antidementia Drugs for Adults with Down Syndrome and Alzheimer’s Disease

New Study on Bone Mass in Adults With Down Syndrome

Intellectual and Developmental Disabilities

Volume 55, Issue 5
(October 2017)

Zestful Data on Community Employment

Zestful Data on Community Employment

We hope you’ve enjoyed our series on employment for people who have Down syndrome! For our final post, we bring you some encouraging stories and zestful employment data that we hope will encourage those looking to support a loved one who’s looking for a job.

Continue reading Zestful Data on Community Employment

New Study Looks Into Racial Disparities in the Down Syndrome Community

A new study funded by the Emily Ann Hayes Research Fund within Cincinnati Children’s Hospital Medical Center looks into racial disparities within the Down syndrome community.

Six researchers conducted a detailed study looking at pre- and post- natal complications and existing co-occurring medical conditions hoping to find answers about why Black children with Down syndrome have a higher mortality rate than White children.  Continue reading New Study Looks Into Racial Disparities in the Down Syndrome Community