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The Road We've Shared

The online community by and for parents and caregivers of adults who have Down syndrome

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Do adults with Down syndrome get adequate medical care?
Health Research

Do adults with Down syndrome get adequate medical care?

By Stephanie
On November 6, 2020November 6, 2020

A recent study from Sweden looks at whether adults with Down syndrome adhere to medical guidelines.  Specific medical guidelines for health surveillance exist for people with Down syndrome (DS) since 25 years but knowledge of adherence to the guidelines is lacking. The guidelines…

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#caregiving#medical care#Medical guidelines
Turkish Study on Food and Nutrition
Caregiving Health Research

Turkish Study on Food and Nutrition

By Stephanie
On May 25, 2020

A recent study from Turkey examined the eating habits of 20 people who have Down syndrome.  Even though the study represents a different culture, it is always interesting to learn from any information that exists, especially when it comes to adults with…

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#eating habits#food#health#nutrition#research#Turkey
Research Corner: “Rates, causes, place and predictors of mortality”
Health Research

Research Corner: “Rates, causes, place and predictors of mortality”

By Stephanie
On May 21, 2020May 21, 2020

This new research study looks at the causes of death for people with intellectual disabilities and specifically adults with Down syndrome.  Important facts: “for Down syndrome adults ‘Down syndrome’,and dementia were most common.” [cause of death]  [people with intellectual disabilities] “die younger,…

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#death#health#research
Measuring Relationships – Caregivers and Adults with Down Syndrome
Caregiving Research

Measuring Relationships – Caregivers and Adults with Down Syndrome

By Stephanie
On April 20, 2020

How would your loved one describe his social network? Would you name the same people? Research suggests that we, as parents, consider those who have something to give our loved ones as better friends.

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#caregiving#friendships#relationships#research#social networks
People living with Down syndrome in the USA
Research

People living with Down syndrome in the USA

By Stephanie
On March 24, 2020

Down Syndrome Population Usa Factsheet 2020

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#birth#population#statistics
Recent Advances in Research on Down Syndrome
Research

Recent Advances in Research on Down Syndrome

By Stephanie
On March 24, 2020

Recent Advances in Research on Down Syndrome  

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#Alzheimer's disease#congenital heart defects#gene therapy
Premature aging in adults with Down syndrome
Aging Research

Premature aging in adults with Down syndrome

By Stephanie
On March 24, 2020March 24, 2020

Premature aging in adults with Down syndrome: genetic, cognitive and functional aspects.   Premature Aging

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#aging#cognitive#genetic#level of functioning
DOWN SYNDROME IN ADULTS: SUCCESS AND CHALLENGE
Aging Health Research

DOWN SYNDROME IN ADULTS: SUCCESS AND CHALLENGE

By Stephanie
On March 24, 2020

Down Syndrome in Adults Success and Challenge 

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#medical issues
Aging Alzheimer's Disease Research

Alzheimer’s Disease and Down Syndrome

By Stephanie
On March 22, 2020March 23, 2020

Alzheimer’s Disease and Down Syndrome     Dementia and People with Intellectual Disabilities  

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Dementia and People with Intellectual Disabilities
Aging Alzheimer's Disease Research

Dementia and People with Intellectual Disabilities

By Stephanie
On March 22, 2020March 23, 2020

Dementia and People With Intellectual Disabilities by walkersvillemom on Scribd

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#British#dementia#Intellectual disabilities#Psychology

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