The online community by and for parents and caregivers of adults who have Down syndrome
We’ve talked about sub-minimum wages and the debate surrounding so called “sheltered workshops” several times. We settled on a position that acknowledges the needs of adults with Down syndrome and their caregivers: The good news is that there is a new online…
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Has your son who’s 5’ 4” (or shorter) told you that he’s going to be an NBA player? Has your beautiful daughter who has weak ankles and knees spoken to you about her dream of becoming a prima ballerina? Does your son…
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The news story A terrible story hit the news recently. It involved a young man who had Down syndrome who died after receiving dental care. The family of the man has been waiting for justice for four years. We see too many…
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Advocacy around research is important, especially because Down syndrome is the least funded genetic condition by the National Institutes of Health (NIH).
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In March 2018, 21 researchers published a study in the British Journal of Psychiatry called “Impact of cholinesterase inhibitors or memantine on survival in adults with Down syndrome and dementia: clinical cohort study.” The researchers noted that there have been few studies…
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Intellectual and Developmental Disabilities Volume 55, Issue 5 (October 2017) Bone Mass Assessment in a Cohort of Adults With Down Syndrome: A Cross-Sectional Study Article Citation: Ramón Costa, Rosa De Miguel, Clara García, Diego Real de Asúa, Santos Castañeda, Fernando Moldenhauer, and Carmen Suárez(2017) Bone Mass Assessment in…
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We hope you’ve enjoyed our series on employment for people who have Down syndrome! For our final post, we bring you some encouraging stories and zestful employment data that we hope will encourage those looking to support a loved one who’s looking for…
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Today we’ll look at the numbers on disability and employment from two different entities that focus on this issue.
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A new study funded by the Emily Ann Hayes Research Fund within Cincinnati Children’s Hospital Medical Center looks into racial disparities within the Down syndrome community. Six researchers conducted a detailed study looking at pre- and post- natal complications and existing co-occurring…
read moreBy Stephanie Holland Change.org Petition Today we posted a petition to gather support for advocacy around an important issue – here’s why. The Research Back in March, and again in July, I wrote about a discrepancy that I found unacceptable and frightening….
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