N  is for National Advocacy

National Advocacy on The Road We've SharedAdvocacy can take many forms, from simple things like being out in the community every day so people have a chance to see and interact with someone who has an intellectual and/or developmental disability, to more complicated issues that require expertise and legislative action.
Today we’re looking at how advocacy plays out on a policy level and how The National Down Syndrome Society plays an important role in creating change at the federal and state level.

Buddy Walk On Washington

This week, Josh and I participated in our first Buddy Walk® on Washington (#BWW2015) hosted by the NDSS.  We got a chance to me Maryland Representative and member of the Down Syndrome Caucus, Chris Van Hollen.
We also got to meet Dev Adelman and Dev on The Road We've Sharedher family who came all the way from Washington state! They’re fresh off of their appearance at the United Nations for World Down Syndrome Day. (Stick around for the rest of the month – we’ll hear more from them on their travels!)
You can also hop over to Raise Expectations and say hi!

If you’re a regular here on The Road, you’ll know that racial disparities and research are important to us.  During the #BWW2015 over 150 advocates advocates from across the country met with over 100 Capitol Hill offices and talked about the NDSS legislative priorities for the year. This year, Down syndrome research is part of that list.  It was a great opportunity to bring our specific concerns to the attention of lawmakers as one part of a larger agenda.

We thank the NDSS for all their hard work – putting this event together and spending countless hours working in the political arena for the benefit of all people who have Down syndrome.

From the President of NDSS

The president of NDSS, Sara Weir recently started her own blog: Value. Acceptance. Inclusion.  A VIEW FROM THE PRESIDENT OF THE NATIONAL DOWN SYNDROME SOCIETY

Patti Saylor with NDSS on The Road We've Shared

Heather Sachs, Patti Saylor, Sara Weir

This is my favorite picture from her latest post taken “just hours after the Maryland Ethan Saylor Self-Advocacy Center Bill Passed the Maryland House!”  Heather Sachs shown here with Patti and Sara, is charged with helping each state pass their own ABLE Act!

The folks at NDSS are always on the go when it comes to legislation.

Be sure to check out Sara’s blog for more great pictures and stories about the Buddy Walk on Washington in the coming days!