Tag Archives: advocacy

Down Syndrome History in Film – Institutions

Every Sunday during Down Syndrome Awareness Month we’ll be taking a look at how a particular movie(s) portrays a piece of our community’s history. To start us off, we’ll look at how two films, one narrative and one documentary, portrayed institutional life of people with intellectual disabilities. Continue reading Down Syndrome History in Film – Institutions

Why I LOVE the 321 eConference! Knowledge is Power – & Giveaway!

321 eConference

Part of being a parent is learning what you need to know in order to support your children. When something like Down syndrome is involved there’s much more to learn. Access to information can be very different from family to family based on a multitude of reasons.  The 321 eConference levels the playing field a bit by providing access to experts at reasonable prices.

Continue reading Why I LOVE the 321 eConference! Knowledge is Power – & Giveaway!

Disability Day of Mourning

Today is a day set aside to remember a group of people we have lost to soon.

People with disabilities who were killed by a family member.

From the memorial site:

Every year on March 1st, the disability community comes together to remember the victims of filicide – people with disabilities murdered by their family members. Vigils are held on the Day of Mourning in cities around the world.

We have identified 20 individuals who had Down syndrome on that list.

 

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There is no excuse, no reason that makes it understandable.

New Year, Moving Further Down The Road

Happy New Year

If there’s one thing I’ve learned over the years, it’s that there is truth behind the saying, “Man plans, and God laughs.” Still, at the end of every year mortals attempt to plan out the next 365 days.  As parents of children with special needs we’ve done our share of goal setting…

“I will complete X with Y% accuracy Z% of the time”

So, in the interest of tradition, productivity, and accountability I’m attempting to set goals for 2016 on The Road.

Continue reading New Year, Moving Further Down The Road

Down Syndrome Awareness Month – Different is Cool!

By: Stephanie Holland

Different is cool!

Happy National Down Syndrome Awareness Month!

Here at The Road, we’re celebrating our differences. As part of the celebration, we’ll be posting photos every day, sometimes twice a day at 3:21 pm EST and CST.   Be sure to follow the fun on Facebook, Twitter, and Instagram!

(For a little background on why we chose this theme, check out this old post from my Walkersvillemom Blog.)

 

MY SON IS DIFFERENT – AND THAT’S OK!

Equality vs equity

O for Organizing  – The Arc US

by Kristen McKiernan of The Arc

O for Organizing  - The Arc US

The Arc is the largest organization in the country advocating for and serving people with intellectual and developmental disabilities (I/DD), including Down syndrome. We have a rich 60 year history of advocacy and grassroots organizing that continues today through our nearly 700 state and local chapters nationwide. Our mission has always been to promote and protect the human rights of people with I/DD and actively support their full inclusion and participation in the community throughout their lifetimes.

At the national headquarters in Washington, DC, we currently maintain 9 national programs that are actively changing lives in our community. We also host annual events that bring together families, self-advocates, and professionals to share ideas, inspiration and resources, and we work to support our chapters to advocate at the federal and state level and provide services to their communities at the local level.

Continue reading O for Organizing  – The Arc US

N  is for National Advocacy

National Advocacy on The Road We've SharedAdvocacy can take many forms, from simple things like being out in the community every day so people have a chance to see and interact with someone who has an intellectual and/or developmental disability, to more complicated issues that require expertise and legislative action.
Today we’re looking at how advocacy plays out on a policy level and how The National Down Syndrome Society plays an important role in creating change at the federal and state level.

Continue reading N  is for National Advocacy