In March 2018, 21 researchers published a study in the British Journal of Psychiatry called “Impact of cholinesterase inhibitors or memantine on survival in adults with Down syndrome and dementia: clinical cohort study.”
The researchers noted that there have been few studies conducted, and therefore little information is available on how to treat adults with Down syndrome and Alzheimer’s disease. They set out to test specific antidementia drugs on people with Down syndrome and Alzheimer’s disease. Continue reading Debate Over Study on Antidementia Drugs for Adults with Down Syndrome and Alzheimer’s Disease →
Today’s short film tells the story of Glen Miller, a young man who decides to take matters into his own hands when his usual assistant takes the day off. “Cared Witless” is directed by Karen Scheader.
We’re proud to announce a new initiative here on The Road:
“The Road” Scholars!
In conjunction with 321 eLearning, we’re creating a collection of courses designed specifically for parents and caregivers of adults who have Down syndrome.
Continue reading Alzheimer’s Disease and Down Syndrome Course & Giveaway →
By: Stephanie Holland
Parenting, of all kinds, requires hard work and determination. We all want the best for our children and try not to let what might go wrong keep us from living our best today.
Sometimes, we need to put our own discomfort aside. Alzheimer’s disease is affecting record numbers of families, and a disproportionate percentage of the Down syndrome community will continue to be affected. We have seen an increase in attention being paid to research for a cure. We also need increase our efforts to support families that are facing caregiving for loved ones with dementia and other medical conditions that typically occur in adults with Down syndrome.
Continue reading How Do We Face The Scary Truth? Down Syndrome and Dementia: A Caregiving Issue That Needs Our Attention →
I could use a play on words and explain the reason this last post in our A to Z Blogging Challenge is late by saying something about forgetting to do it.The truth is that it’s a difficult subject to write, or even think, about. For those of us with adult children who have Down syndrome, the worry about Alzheimer’s disease is always present.
Part of our series of infographics on aging and Down syndrome
Continue reading Z – Alzheimer’s Disease →
The online community by and for parents and caregivers of adults who have Down syndrome
