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The Road We've Shared

The Road We've Shared

The online community by and for parents and caregivers of adults who have Down syndrome

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Do adults with Down syndrome get adequate medical care?
Health Research

Do adults with Down syndrome get adequate medical care?

By Stephanie
On November 6, 2020November 6, 2020

A recent study from Sweden looks at whether adults with Down syndrome adhere to medical guidelines.  Specific medical guidelines for health surveillance exist for people with Down syndrome (DS) since 25 years but knowledge of adherence to the guidelines is lacking. The guidelines…

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#caregiving#medical care#Medical guidelines
Measuring Relationships – Caregivers and Adults with Down Syndrome
Caregiving Research

Measuring Relationships – Caregivers and Adults with Down Syndrome

By Stephanie
On April 20, 2020

How would your loved one describe his social network? Would you name the same people? Research suggests that we, as parents, consider those who have something to give our loved ones as better friends.

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#caregiving#friendships#relationships#research#social networks
A to Z Blogging Challenge: Spoon Theory
A to Z Blogging Challenge 2019 Advocacy Caregiving

A to Z Blogging Challenge: Spoon Theory

By Stephanie
On April 22, 2019April 23, 2019

  People who care for others have to take care of themselves to avoid caregiver burnout and other emotional and physical problems.

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#caregiving#self#Spoon Theory
Debate Over Antidementia Drugs for Adults with Down Syndrome and Alzheimer’s Disease
Alzheimer's Disease Research

Debate Over Antidementia Drugs for Adults with Down Syndrome and Alzheimer’s Disease

By Stephanie
On October 29, 2018March 18, 2020

In March 2018, 21 researchers published a study in the British Journal of Psychiatry called “Impact of cholinesterase inhibitors or memantine on survival in adults with Down syndrome and dementia: clinical cohort study.” The researchers noted that there have been few studies…

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#Alzheimer's disease#caregiving#research
Short Film Monday – Cared Witless
Caregiving Down syndrome in the media National Down Syndrome Awareness Month 2016

Short Film Monday – Cared Witless

By Stephanie
On October 10, 2016September 29, 2016

Today’s short film tells the story of Glen Miller, a young man who decides to take matters into his own hands when his usual assistant takes the day off.  “Cared Witless” is directed by Karen Scheader.  

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#caregiving#paid staff
Alzheimer's Disease

Alzheimer’s Disease and Down Syndrome Course & Giveaway

By Stephanie
On October 15, 2015October 15, 2015

  We’re proud to announce a new initiative here on The Road: “The Road” Scholars! In conjunction with 321 eLearning, we’re creating a collection of courses designed specifically for parents and caregivers of adults who have Down syndrome.

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#321 eLearning#caregiving
Alzheimer's Disease

How Do We Face The Scary Truth? Down Syndrome and Dementia: A Caregiving Issue That Needs Our Attention

By Stephanie
On May 21, 2015July 23, 2015

By: Stephanie Holland Parenting, of all kinds, requires hard work and determination. We all want the best for our children and try not to let what might go wrong keep us from living our best today. Sometimes, we need to put our…

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#caregiving#health & wellbeing#medical issues#parenting
A to Z Blogging Challenge 2015 Alzheimer's Disease

Z – Alzheimer’s Disease

By Stephanie
On May 3, 2015November 6, 2020

By; Stephanie Holland I could use a play on words and explain the reason this last post in our A to Z Blogging Challenge is late by saying something about forgetting to do it.The truth is that it’s a difficult subject to…

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#caregiving#LuMind#research

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  • Stress and Depression Linked to Onset of Cognitive Decline and Alzheimer’s Disease in People with Down Syndrome
  • Do adults with Down syndrome get adequate medical care?
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