Skip to content
The Road We've Shared

The Road We've Shared

The online community by and for parents and caregivers of adults who have Down syndrome

  • Home
  • Justice for Ethan
    • A Brief Summary of the Story
    • Support MD SB853 & HB1161
    • Victory at Change.org
    • Press Release – Ethan Saylor Memorial Film Festival
    • Ethan’s Law – The Movie
    • The Civil Case – A Summary
  • About Us
    • Our Philosophy
    • Strategic Planning
  • Count Us In!
    • 321 Racial Health Disparities in Down Syndrome
    • Research: Why Does it Matter to You and Your Families?
  • Blog
  • Research Corner
    • Alzheimer’s Disease – Dr. Brian Chicoine
    • All about the Down syndrome registry
    • Health & Aging with Down syndrome
    • Vaccine targeting AD with Down syndrome
    • Debate Over Antidementia Drugs

Tag: planning

  • Home
  • planning
Caregiving Resources

The Caregiver’s Notebook – A Review and Giveaway

By Stephanie
On December 7, 2014July 27, 2015

By: Stephanie Holland This year, we’ve been talking a lot about the joys and responsibilities of caregiving for adults who have Down syndrome.  We all need a little help every now and then, and I’ve been extremely grateful for the way people…

read more
#planning
Aging

Issue Monday – Aging with Down Syndrome

By Stephanie
On October 19, 2014October 13, 2015

By Stephanie Holland *Revised 10/13/15 One of the reasons we decided to create a separate community was our realization that parents and caregivers of adults have specific needs for information.  We’re past the stage of schools and education.  We’re lucky to be living…

read more
#guardianship#planning
Legal Issues

Letter of Intent

By Stephanie
On April 17, 2014July 25, 2015

By Stephanie Holland Since this month’s topic is legal issues, I wanted to start looking at what I’ve heard experts say is the most important “first step” in planning for the future – the Letter of Intent (LOI). From what I’ve read (I’m no…

read more
#planning

Archives

Categories

Latest Blogs

  • Do adults with Down syndrome get adequate medical care?
  • #CountUsIn #UnequalAwareness #DsandRace
  • Turkish Study on Food and Nutrition
  • Research Corner: “Rates, causes, place and predictors of mortality”
  • Zack Gottsagen – A to Z Blogging Challenge

Enter your email address:

Delivered by FeedBurner

Top
Tweets by The Road We've Shared
#AtoZChallenge 2020 badge

Tags

#321Proud #BornThisWay #DSAM19 #JusticeForEthan #TRoadWS advocacy Alzheimer's disease art Black Day - The Monster Rock Band Born This Way Born this Way on A&E caregiving Chris Burke cooking dance Disability services DOWNs Town Mall Ethan's Law Ethan Saylor exercise federal legislation giveaway guardianship health institutions jobs John Tucker Just Joshin' Ya Mardra Sikora music musicals NCCJD NDSC nutrition racial disparities relationships research romantic relationships social change social media The Arc WDSD World Wrestling Entertainment wrestling WWE

Copyright © 2021 The Road We've Shared - WordPress Theme : By Sparkle Themes