Tag Archives: research

New Study on Bone Mass in Adults With Down Syndrome

Intellectual and Developmental Disabilities

Volume 55, Issue 5
(October 2017)

M is for Music Therapy – A to Z Blogging Challenge

M on Blogging from A to ZMusic therapy may not be as common as some of the others we’re used to (PT, OT, and Speech) but it can be just as helpful. Most of the information online seems to be geared toward children – as we often see – but we can also approach music therapy from a lifelong learner perspective.

Continue reading M is for Music Therapy – A to Z Blogging Challenge

#CountUsIn – Co-presenting with NIH on #RaceAndDs

racial disparities exist

For me, the highlight of this weekend’s Down Syndrome Affiliates in Action (DSAIA) conference was the presentation is was honored to co-present.  For the first time in 18+ months since I first wrote about the racial health disparities that exist in the Ds community, I felt like we might be moving forward.

Continue reading #CountUsIn – Co-presenting with NIH on #RaceAndDs

Z – Alzheimer’s Disease

Z for Alzheimer's Disease on The Road We've SharedI could use a play on words and explain the reason this last post in our A to Z Blogging Challenge is late by saying something about forgetting to do it.The truth is that it’s a difficult subject to write, or even think, about.  For those of us with adult children who have Down syndrome, the worry about Alzheimer’s disease is always present.

Early onset Alzheimer's disease and dementia in adults with Down syndrome

Part of our series of infographics on aging and Down syndrome

Continue reading Z – Alzheimer’s Disease

C is for connected Ds-Connected that is!

By: Stephanie Holland  ***Update by Sujata Bardhan, Ph.D., Scientific Program Manager, DS-Connect Registry Coordinator
C - A to Z Blogging Challenge - The Road We've SharedOne great example of how the community comes together for the greater good is the collaboration that has happened to create the Down syndrome registry.  The funding comes from NIH’s Eunice Kennedy Shriver National Institute of Child Health and Human Development (NICHD), but ongoing input comes from parents, families, and representatives from every corner of the Ds world.

The Down syndrome Consortium members

Continue reading C is for connected Ds-Connected that is!