Tag Archives: social media

I Can Be a Father (With Down Syndrome)

Has your son who’s 5’ 4” (or shorter) told you that he’s going to be an NBA player? Has your beautiful daughter who has weak ankles and knees spoken to you about her dream of becoming a prima ballerina? Does your son who has absolutely NO rhythm and can’t carry a tune in a bucket proclaimed himself to be a bona fide rock star?

That last one is mine. My son has identified himself as a rock star since he was a toddler. I’ve decided to go along with the dream even though I cringe a little every time he sings. That’s what moms are for – to help their children do whatever it takes, within reason, to achieve their goals. He’s also demanded at different times that he’s going to be president, the King of bowling, and a WWE superstar. I agree enough to give him self-confidence but we both know none of those things are likely to happen.

It’s one thing when the dreams children dream aren’t feasible because their bodies just aren’t built that way. Not everyone can be a professional athlete or leader of the free world. [Not going there but wouldn’t it be nice if someone with Down syndrome ruled the world.]

But what about when the dream is physically possible, but not “socially acceptable?” Continue reading I Can Be a Father (With Down Syndrome)

D is for Dancin’ Dehvin – A to Z Blogging Challenge

D Blogging from A to ZWhat happens when a video goes viral?

A young man gets close to 10,000 likes on his Facebook page and the world gets to see that Down syndrome doesn’t get him down!


Dehvin loves to dance. His mother, Kenya Flowers shares his videos online and in October, 2015, one took off!


Continue reading D is for Dancin’ Dehvin – A to Z Blogging Challenge

Sharing Our Stories On Social Media: How Much of My Story Is Mine To Tell?


What do you do when someone says something that makes you question what you believe? What if the comments give you reason to doubt your vision of yourself and what you are called to do?

That’s what happened to me today when I read an article by Carly Findlay called “When parents overshare their children’s disability”.

It’s not the first time I’ve seen/heard disability advocates express these views. It’s not the first time I’ve pondered the validity of what I do.  We’ve talked about why we feel it’s important to share our stories before. The difference today comes from where I am in the journey on The Road and the honesty of Carly’s words.

Continue reading Sharing Our Stories On Social Media: How Much of My Story Is Mine To Tell?

I is for IDSC Facebook Groups

By: Beth Sullivan and Stephanie Holland
I for IDSC Facebook Groups on The Road We've SharedWhile we’re talking about collaboration in the Down syndrome community, we have to highlight how social media has made it much easier for individuals to reach out to others in similar situations.  The International Down Syndrome Coalition (IDSC) has created the space for us to do just that!
We asked IDSC Chairman, Beth Sullivan, to tell us a little bit about one of the unique strengths of IDSC: their Facebook groups.  Thanks Beth!
The International Down Syndrome Coalition (IDSC) supports families with a loved one with Down syndrome in every step of their journey – from conception and throughout life.The IDSC understands the many emotions and thoughts that families with a new diagnosis may be experiencing. We are here to offer support, guidance and connections to other families that are now, or who have recently, gone through the same emotions and thought processes. Families with a new diagnosis, please keep in mind – you are not alone. This new journey will bring some challenges as well as much love and excitement. The IDSC is here to support you every step of the way.

Continue reading I is for IDSC Facebook Groups

Why Stories are Important: Lesson 1

By Stephanie Holland

This month we’ll focus on telling stories about the adults who have Down syndrome that we love.  We’ll also address some of the issues that surround talking in public about our loved ones like:

  • What stories should be told – should we only tell the good ones?
  • How should they be told – by whom ?
  • What about privacy?
  • What audience?
  • Does it do any good?

Rion gives us a perfect example

Continue reading Why Stories are Important: Lesson 1