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The Road We've Shared

The Road We've Shared

The online community by and for parents and caregivers of adults who have Down syndrome

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Category: A to Z Blogging Challenge 2022

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Down Syndrome, Raising a Child Like Kimmy – A to Z Blogging Challenge
A to Z Blogging Challenge 2022

Down Syndrome, Raising a Child Like Kimmy – A to Z Blogging Challenge

By Stephanie
On April 13, 2022April 20, 2022

If you’re following my blog this month, you may remember me saying that some of the titles of memoirs can be a bit problematic. Students of disability studies would point to the emphasis being on the syndrome instead of the person, and…

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Just Try and Stop Me: The Memoir of a Young Woman With Down Syndrome – A to Z Blogging Challenge
A to Z Blogging Challenge 2022

Just Try and Stop Me: The Memoir of a Young Woman With Down Syndrome – A to Z Blogging Challenge

By Stephanie
On April 12, 2022April 11, 2022

Today we have another story written by someone who has Down syndrome. Just Try and Stop Me, written by Mackenzie Meyer and Beth Rowe is a unique book in that Mackenzie’s words are captured true to life in some parts, and in…

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#autobiography#language
I’m Staying at Richard’s: Raising the Exceptional Son I Never Expected – A to Z Blogging Challenge
A to Z Blogging Challenge 2022

I’m Staying at Richard’s: Raising the Exceptional Son I Never Expected – A to Z Blogging Challenge

By Stephanie
On April 11, 2022April 10, 2022

It’s always good to get at least a little bit of information about the author before you start reading a book.  The blurbs on selling sites, like Amazon, can usually give you a place to start. This author, for example is from…

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Hello, My Name is Ken – A to Z Blogging Challenge
A to Z Blogging Challenge 2022 Aging Alzheimer's Disease

Hello, My Name is Ken – A to Z Blogging Challenge

By Stephanie
On April 9, 2022April 20, 2022

A recent article in the Washington Post detailed the current battle around the new Alzheimer’s drug, Aduhelm. The question is whether people with Down syndrome should be given access to a drug with questionable research behind it. The article highlighted the link…

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#Alzheimer's disease
Gifts 2: How People with Down Syndrome Enrich the World – A to Z Blogging Challenge
A to Z Blogging Challenge 2022

Gifts 2: How People with Down Syndrome Enrich the World – A to Z Blogging Challenge

By Stephanie
On April 8, 2022April 20, 2022

The title of this one is fabulous!  I sometimes wonder what makes authors choose a title. I chose a few for this year’s A to Z challenge that have horrendous titles – just for that very reason. This one is an example…

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Five Courageous Mothers: Raising Children with Down Syndrome – A to Z Blogging Challenge
A to Z Blogging Challenge 2022

Five Courageous Mothers: Raising Children with Down Syndrome – A to Z Blogging Challenge

By Stephanie
On April 7, 2022April 20, 2022

I love stories where people change their minds about what they though they knew – especially teachers who not only interact with the child who inspired the story, but all the children he/she will come in contact with throughout his/her career.  Five…

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More Alike Than Different: My Life with Down Syndrome – A to Z Blogging Challenge
A to Z Blogging Challenge 2022

More Alike Than Different: My Life with Down Syndrome – A to Z Blogging Challenge

By Stephanie
On April 6, 2022April 10, 2022

David Egan is a successful advocate for the rights of people with Down syndrome. In his book, published in 2020, he tells his own story of inclusion. If you, even for a moment, doubt that he wrote it himself, watch as he…

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#advocacy
The Down Syndrome Diary: The journey of one little book that will change the world – A to Z Blogging Challenge
A to Z Blogging Challenge 2022

The Down Syndrome Diary: The journey of one little book that will change the world – A to Z Blogging Challenge

By Stephanie
On April 5, 2022April 10, 2022

What a great idea for a book!  The Down Syndrome Diary is an example of the resourcefulness of the Ds community.  One of the best ways we help each other is to share our stories.  From the Foreword: “The project was born…

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#sharing stories
Crazy Dave (Native Voices) – A to Z Blogging Challenge
A to Z Blogging Challenge 2022

Crazy Dave (Native Voices) – A to Z Blogging Challenge

By Stephanie
On April 4, 2022April 2, 2022

Crazy Dave is a unique story. It gives us a glimpse, not only of life with Down syndrome but also the sometimes harsh life of the native [sic] community in a time of upheaval. From the back cover: “Through the story of…

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#Canada#culture#native community#reservation life
Beauty Exposed: Captivating stories of life with siblings who have Down syndrome – A to Z Blogging Challenge
A to Z Blogging Challenge 2022

Beauty Exposed: Captivating stories of life with siblings who have Down syndrome – A to Z Blogging Challenge

By Stephanie
On April 2, 2022April 1, 2022

Beauty Exposed is from the perspective of siblings to people who have Down syndrome. These are often some of the most significant relationships our loved ones have.   This one is on my ‘to read’ list.  I just got my copy this week….

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#siblings

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  • New Study: Detecting sleep apnea in adults with Down syndrome using WatchPAT
  • Unwanted: How a Mother Learned to Turn Shame, Grief, and Fear into Purpose, Passion, and Empowerment – A to Z Blogging Challenge
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  • Shut Away: When Down Syndrome Was a Life Sentence – A to Z Blogging Challenge
  • Reasons to Smile: Celebrating People Living with Down Syndrome – A to Z Blogging Challenge

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  • Home
  • About Us
    • Strategic Planning
  • Justice For Ethan
    • The Civil Case – A Summary
    • Press Release – Ethan Saylor Memorial Film Festival
    • Ethan’s Law – The Movie
    • A Brief Summary of the Story
  • Blog
  • Count Us In!
    • Research: Why Does it Matter to You and Your Families?
  • Research Corner
    • Stress and Depression Linked to Onset of Cognitive Decline and Alzheimer’s Disease in People with Down Syndrome
    • Alzheimer’s Disease – Dr. Brian Chicoine
    • Health & Aging with Down syndrome
    • Vaccine targeting AD with Down syndrome
    • Debate Over Antidementia Drugs
    • All about the Down syndrome registry
  • Down Syndrome in Children’s Literature
    • Children’s Library