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The Road We've Shared

The online community by and for parents and caregivers of adults who have Down syndrome

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Category: A to Z Blogging Challenge 2015

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A to Z Blogging Challenge 2015 Down syndrome organizations Guest posts

P is for Phoenix – NDSC

By Stephanie
On April 20, 2015July 23, 2015

P is also for “people” and “professionals” By Sue Joe of the National Down Syndrome Congress Phoenix is the host city for his year’s NDSC Convention in June, and it’s where we’ll be bringing together people (that’s you!) and professionals in the…

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A to Z Blogging Challenge 2015 Disability Services Guest posts

O for Organizing  – The Arc US

By Stephanie
On April 19, 2015July 23, 2015

by Kristen McKiernan of The Arc The Arc is the largest organization in the country advocating for and serving people with intellectual and developmental disabilities (I/DD), including Down syndrome. We have a rich 60 year history of advocacy and grassroots organizing that continues…

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#advocacy
A to Z Blogging Challenge 2015 Down syndrome organizations

N  is for National Advocacy

By Stephanie
On April 18, 2015July 23, 2015

By: Stephanie Holland Advocacy can take many forms, from simple things like being out in the community every day so people have a chance to see and interact with someone who has an intellectual and/or developmental disability, to more complicated issues that…

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#advocacy
A to Z Blogging Challenge 2015 Down syndrome organizations Guest posts

M is for Mosaic Down Syndrome

By Stephanie
On April 18, 2015July 23, 2015

By: Brandy Snow and Stephanie Holland Have you heard of Mosaic Down syndrome but wondered what it was or how different it is from Trisomy 21?Has some one asked you if you can have “a little bit” of Down syndrome? We learned about…

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#Mosaic Down Syndrome
A to Z Blogging Challenge 2015 Down syndrome organizations Guest posts

Local!

By Stephanie
On April 14, 2015July 23, 2015

Everything Starts at Home  This week there is the Buddy Walk on Washington.  Big things are being done on the big stage.  But, what’s happening at home in your town? The local groups have their feet on the ground, working for the…

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#Mardra Sikora
A to Z Blogging Challenge 2015 Community Updates

Kindred Spirits – The Road We’ve Shared

By Stephanie
On April 13, 2015July 24, 2015

By: Stephanie Holland As humans, we all have a desire to connect with others. Sometimes, we long to find companions who understand what we have gone through – someone who “gets it.”The Road We’ve Shared is a place where kindred spirits can…

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#All Together Now
A to Z Blogging Challenge 2015 Disability Services Ethan's Law Guest posts

Justice for All

By Stephanie
On April 11, 2015July 24, 2015

By: Eliana Peck and Stephanie Holland  Justice is something of a hot topic lately.  News reports of another person with a disability being mistreated or lost in the system seem to appear daily. One organization that focuses solely on finding justice for our…

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#criminal justice#legal
A to Z Blogging Challenge 2015 Down syndrome organizations Guest posts

I is for IDSC Facebook Groups

By Stephanie
On April 10, 2015July 25, 2015

By: Beth Sullivan and Stephanie Holland While we’re talking about collaboration in the Down syndrome community, we have to highlight how social media has made it much easier for individuals to reach out to others in similar situations.  The International Down Syndrome…

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#Facebook#IDSC#social media
A to Z Blogging Challenge 2015 Down syndrome in the media

H is for Happy!

By Stephanie
On April 9, 2015July 25, 2015

By: Stephanie Holland If by chance you’re not happy right now – we’ve got just what you need!Today we look at videos that include adults who have Down syndrome, and of course, we start with the one that went viral last year…

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A to Z Blogging Challenge 2015 Ethan's Law Guest posts

GrassRoots Advocacy

By Stephanie
On April 8, 2015February 16, 2017

By: Edward Rhodes & Stephanie Holland Today we look at grassroots advocacy and what can happen when – as Margaret Mead said and fictional President Bartlett borrowed- a small group of people become committed to change. Never doubt that a small group of…

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  • Home
  • About Us
    • Strategic Planning
  • Justice For Ethan
    • The Civil Case – A Summary
    • Press Release – Ethan Saylor Memorial Film Festival
    • Ethan’s Law – The Movie
    • A Brief Summary of the Story
  • Blog
  • Count Us In!
    • Research: Why Does it Matter to You and Your Families?
  • Research Corner
    • Stress and Depression Linked to Onset of Cognitive Decline and Alzheimer’s Disease in People with Down Syndrome
    • Alzheimer’s Disease – Dr. Brian Chicoine
    • Health & Aging with Down syndrome
    • Vaccine targeting AD with Down syndrome
    • Debate Over Antidementia Drugs
    • All about the Down syndrome registry
  • Down Syndrome in Children’s Literature
    • Children’s Library