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The Road We've Shared

The Road We've Shared

The online community by and for parents and caregivers of adults who have Down syndrome

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Category: Advocacy

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Advocacy Disability Services

More Choices – Special Olympics

By Stephanie
On June 27, 2014February 15, 2016

Written by Stephanie Holland (Walkersvillemom)  If you’ve been following our recent posts about sheltered workshops and jobs you’ll know that the stars have aligned in such a way that all three of the team members here actually agree on something – that…

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#inclusion#Special Olympics
Advocacy

Christian continues to learn as he teaches others

By Stephanie
On April 17, 2014February 15, 2016

Christian Royal has a gift.  His pottery is beautiful and functional.  It has the hallmark of true artistry, a unique look that expresses what he wants to say about the world around him, his Charleston, SC home.   His passion and attention to…

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Advocacy Community Updates

More than a story – a whole book!

By Mardra Sikora
On March 28, 2014February 15, 2016

Today we are sharing this story from Gary Bender who answers her own question: Did I really write a book? I started our blog, The Ordinary Life of an Extraordinary  Girl on August 26, 2009 with the following introduction, “Today  I decided I wanted to…

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#stories
Advocacy Parenting

Flipping Awareness

By Stephanie
On March 20, 2014February 15, 2016

The other side of awareness Today’s guest post in honor of WDSD comes from Susan Holcombe – mother of Rion. In preparation for all of the “awareness” discussions that would be happening this week, I asked for stories that flip our usual…

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Advocacy Parenting

Professionals listening to a parents perspective

By Mardra Sikora
On March 19, 2014February 15, 2016

In March 2014 the theme on The Road was stories. In this post, originally shared 3/19, Mardra shared a few of the stories she shared with professional service providers who work with developmentally delayed adults.  Speaking of Stories… I’m sharing the mugshot, I mean…

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Advocacy Parenting

JOSH IS DRIVING

By Stephanie
On March 9, 2014February 15, 2016

I don’t have any one story that pops into my mind that I can share with you about Josh.  Specifically, because I share daily stories about his life on his Facebook page, Just Joshin’ Ya, so it would seem that I’m all storied-out, OR…

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#Just Joshin' Ya
Advocacy Ethan's Law Guest posts

From the director of the film-in-progress: ethan’s law

By Stephanie
On February 25, 2014February 15, 2016

Emma and Ethan Saylor Hello blog readers, my name is Edward Rhodes and I am the director of the documentary Ethan’s Law.   Our intention is to depict accurately the events leading up to the death of Ethan Saylor, the actions taken by Governor…

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  • Home
  • About Us
    • Strategic Planning
  • Justice For Ethan
    • The Civil Case – A Summary
    • Press Release – Ethan Saylor Memorial Film Festival
    • Ethan’s Law – The Movie
    • A Brief Summary of the Story
  • Blog
  • Count Us In!
    • Research: Why Does it Matter to You and Your Families?
  • Research Corner
    • Stress and Depression Linked to Onset of Cognitive Decline and Alzheimer’s Disease in People with Down Syndrome
    • Alzheimer’s Disease – Dr. Brian Chicoine
    • Health & Aging with Down syndrome
    • Vaccine targeting AD with Down syndrome
    • Debate Over Antidementia Drugs
    • All about the Down syndrome registry
  • Down Syndrome in Children’s Literature
    • Children’s Library