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The Road We've Shared

The Road We've Shared

The online community by and for parents and caregivers of adults who have Down syndrome

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Category: Caregiving

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April A to Z Blogging Challenge: Dignity of Risk
A to Z Blogging Challenge 2019 Caregiving Parenting

April A to Z Blogging Challenge: Dignity of Risk

By Stephanie
On April 4, 2019April 16, 2019

  One of the most important things we, as parents, can do for our children is allow them the space to make their own mistakes.

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#Decisions#Over-protectiveness
Short Film Monday – Cared Witless
Caregiving Down syndrome in the media National Down Syndrome Awareness Month 2016

Short Film Monday – Cared Witless

By Stephanie
On October 10, 2016September 29, 2016

Today’s short film tells the story of Glen Miller, a young man who decides to take matters into his own hands when his usual assistant takes the day off.  “Cared Witless” is directed by Karen Scheader.  

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#caregiving#paid staff
Advocacy Caregiving Disability Services

Perspective – Life in a Group Home

By Stephanie
On August 10, 2015October 1, 2015

Imagine Imagine it, someone else makes all of your decisions: where you live, who you live with, and what your daily routine entails. This person might be a family member, but in most cases everything from the choices available to you to…

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#group homes#perspective#SSI
Caregiving

Acceptable RIsk?

By Stephanie
On July 12, 2015July 23, 2015

By: Stephanie Holland This week another story of an adult who has Down syndrome gone missing came across social media.  The 35-year-old woman was found, nearly a week later, but her story brings up more questions about what is “acceptable” risk when…

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#independence#risk
A to Z Blogging Challenge 2015 Caregiving

W – Work that Needs Doing

By Stephanie
On April 29, 2015July 23, 2015

By: Stephanie Holland Those of us with adult children know that we, as a society, have come a long way in terms of advocacy and services for people with intellectual and developmental disabilities (ID/DD);  but we also know that we still have…

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#Disability services#Down syndrome organizations
Caregiving Resources

The Caregiver’s Notebook – A Review and Giveaway

By Stephanie
On December 7, 2014July 27, 2015

By: Stephanie Holland This year, we’ve been talking a lot about the joys and responsibilities of caregiving for adults who have Down syndrome.  We all need a little help every now and then, and I’ve been extremely grateful for the way people…

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#planning
Caregiving Health

Healthy Living Month – Take Care of YOU!

By Stephanie
On August 3, 2014February 15, 2016

Yes! You ARE a Caregiver! August is healthy living month on The Road and as we focus on ways to keep our loved ones active and healthy, we can’t forget that we also need to take care of ourselves.   As parents,…

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Advocacy Caregiving

A person with down syndrome can, in fact, be an introvert

By Mardra Sikora
On July 14, 2014February 15, 2016

This blog originally was posted by Grown Ups and Downs February 26, 2014. In my house a common argument is “Admit it, you’re an extravert.” “Nooo – you are the extravert!” “You are!” “No, You are!” And so on… This is because…

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Caregiving

Settling….

By Stephanie
On May 27, 2014February 15, 2016

As adults, we all end up settling in one way or another.  How many of us, with or without a disability, end up working at a job we absolutely love?  Most of us settle for something that will pay the bills.  Hopefully,…

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#jobs
Caregiving Research

COGNITIVE ENHANCEMENT: PERCEPTIONS AMONG PARENTS OF CHILDREN WITH DISABILITIES

By Stephanie
On March 17, 2014February 15, 2016

Natalie Ball  &  Gregor Wolbring   –  2012 Download .pdf of original study This study was conducted as part of an undergraduate honors thesis project by students at the University of Calgary.   Participants were 12 parents – 6 with children who had intellectual disability…

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  • Home
  • About Us
    • Strategic Planning
  • Justice For Ethan
    • The Civil Case – A Summary
    • Press Release – Ethan Saylor Memorial Film Festival
    • Ethan’s Law – The Movie
    • A Brief Summary of the Story
  • Blog
  • Count Us In!
    • Research: Why Does it Matter to You and Your Families?
  • Research Corner
    • Stress and Depression Linked to Onset of Cognitive Decline and Alzheimer’s Disease in People with Down Syndrome
    • Alzheimer’s Disease – Dr. Brian Chicoine
    • Health & Aging with Down syndrome
    • Vaccine targeting AD with Down syndrome
    • Debate Over Antidementia Drugs
    • All about the Down syndrome registry
  • Down Syndrome in Children’s Literature
    • Children’s Library