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The Road We've Shared

The Road We've Shared

The online community by and for parents and caregivers of adults who have Down syndrome

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Category: Parenting

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Aging with Down syndrome
Parenting

Aging with Down syndrome

By Stephanie
On September 26, 2016

I turned 50 this week. Along with that milestone came what I imagine are the typical feelings that people feel when marking a half-century. I felt nostalgic for the time that has passed and wondered how I could have possibly gotten this…

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#birthday#feelings#time#WWE
#BornThisWay Surprises All Around
Down syndrome in the media Parenting

#BornThisWay Surprises All Around

By Stephanie
On September 14, 2016

This week has been a very big one for fans of Born This Way on A&E.  The show continues to break new ground and prove that Hollywood just might learn a thing or two from people with disabilities – and their families.

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##BornThisWay#Born this Way on A&E
Who’s Your Hero? Born This Way Giveaway from A&E
Down syndrome in the media Parenting

Who’s Your Hero? Born This Way Giveaway from A&E

By Stephanie
On July 31, 2016July 31, 2016

What kinds of people do you admire? Is there a particular quality that you look for in a hero? What do you think qualifies as inspirational? For me there are many different kinds of heroes out there, mostly people who think of…

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##BornThisWay#giveaway
Parenting

“Not Me” – When My Son With Down Syndrome Feels Left Behind

By Stephanie
On June 24, 2016June 24, 2016

My son Joshua has two “brothers by another mother” who he loves dearly. This picture was taken at the celebration / vow renewal of his youngest brother (left), Today, the middle brother, (right) got married . Josh recorded a short message for his brother that…

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#marriage#siblings
Happy Mothers Day to Those Who Cut The Road
Community Updates Parenting

Happy Mothers Day to Those Who Cut The Road

By Stephanie
On May 9, 2016May 9, 2016

While we’re celebrating our own families today, I’d like to take a moment and wish a Happy Mother’s Day to a specific group of strangers – the Moms who came before us. No matter how old our children with Down syndrome are,…

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#Mother's Day#stories
Tragic, But Never Justified. The Need for Planning is All Too Real
Down syndrome in the media Parenting Resources

Tragic, But Never Justified. The Need for Planning is All Too Real

By Stephanie
On January 2, 2016October 5, 2016

A tragic story is being shared on social media today.  It involves yet another parent who decided to take the life of their child with special needs.  In this case, a beautiful 19-year-old young woman was murdered by her own mother. It…

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#future planning#letter of intent
Down syndrome in the media Parenting

Sharing Our Stories On Social Media: How Much of My Story Is Mine To Tell?

By Stephanie
On July 27, 2015

What do you do when someone says something that makes you question what you believe? What if the comments give you reason to doubt your vision of yourself and what you are called to do? That’s what happened to me today when…

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#social media
Parenting

The Continuum of Down Syndrome

By Stephanie
On February 3, 2015July 25, 2015

By: Stephanie Holland Have you ever been asked “the question?” I’d guess the question most frequently posed to parents of a child who has Down syndrome is “Did you know before he was born?” or “Didn’t you get tested?” Next on the…

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#ADL#community#defining disability#level of functioning#testing
Community Updates Parenting

Let’s Talk About Social

By Stephanie
On August 3, 2014February 15, 2016

Originally posted 2/3/14 by Stephanie Holland February is Valentine’s month – a time when many of us think about our relationships and how to express our love.  Here on “The Road’ we’ve decided to make it a month of discussion around the relationships…

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#relationships#social
Disability Services Parenting

Tailored to special body shapes and needs

By Mardra Sikora
On July 2, 2014February 15, 2016

In business there is a mantra among entrepreneurs: “Find a need and fill it.”  Karen Bowersox didn’t realize there was such a need as special clothes for people with Down syndrome, or even know that she was an entrepreneur until she tried to find clothes for…

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#Downs Designs

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  • Home
  • About Us
    • Strategic Planning
  • Justice For Ethan
    • The Civil Case – A Summary
    • Press Release – Ethan Saylor Memorial Film Festival
    • Ethan’s Law – The Movie
    • A Brief Summary of the Story
  • Blog
  • Count Us In!
    • Research: Why Does it Matter to You and Your Families?
  • Research Corner
    • Stress and Depression Linked to Onset of Cognitive Decline and Alzheimer’s Disease in People with Down Syndrome
    • Alzheimer’s Disease – Dr. Brian Chicoine
    • Health & Aging with Down syndrome
    • Vaccine targeting AD with Down syndrome
    • Debate Over Antidementia Drugs
    • All about the Down syndrome registry
  • Down Syndrome in Children’s Literature
    • Children’s Library