“Action expresses priorities.” What we know : Center for Disease Control: June 08, 2001 / 50(22);463-5 http://www.cdc.gov/mmwr/preview/mmwrhtml/mm5022a3.htm ABC News reported this in 2001: “The National Down Syndrome Society said the study indicates a “serious disparity that really needs to be addressed.”” A position statement…
read moreBy: Stephanie Holland “Down Syndrome Directions: The National Institutes of Health Research Plan on Down Syndrome” was recently published. The new 71-page plan updates the 2007 version and spells out the research priorities for the immediate and long-term future.I spent some time reading…
read moreResearch summary by Stephanie Holland Lack of yearly physical exams / limited access to care: Research suggests (1) that primary care physicians may be able to respond to complaints, but may not be completing much needed preventative medicine options. Some doctors…
read moreBy Stephanie Holland Down syndrome research is one those topics that divides our community. Some feel strongly that research can provide answers to medical questions and new drug therapies are necessary to improve cognition. Others point to the less than ethical tests…
read moreBy Stephanie Holland Things That Make You Go Hmmmm…. Sometimes research studies really make you wonder – “Who thinks up this stuff?” Did we really need a rigorous analysis of soggy breakfast cereal? Seriously, from my years as a…
read moreLet me tell you about the “man voice pill.” Marcus and I like to watch old Disney cartoons together, like classic Mickey Mouse and friends. Not black and white, he’s generally only interested in color TV, but classics just the same. One…
read moreBy Stephanie Holland (AKA Josh’s Mom) Where I Started Until recently, I had an aversion to Down syndrome research, mostly medical research. (My admission is on record here.) I’ve been keeping an open mind as I learn more and getting to know…
read moreAbout a week ago I wrote about how I’ve recently read things that made me question myself as a parent and advocate for my son. The first applied to my writing / blogging about him and the second is about inclusion. How much…
read moreAs someone who has battled with depression, the thought of it attacking my otherwise joyful son is not something I want to even consider. However, the science shows that it is possible, and maybe even a bit more likely, so I decided…
read moreNatalie Ball & Gregor Wolbring – 2012 Download .pdf of original study This study was conducted as part of an undergraduate honors thesis project by students at the University of Calgary. Participants were 12 parents – 6 with children who had intellectual disability…
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