Has your son who’s 5’ 4” (or shorter) told you that he’s going to be an NBA player? Has your beautiful daughter who has weak ankles and knees spoken to you about her dream of becoming a prima ballerina? Does your son…
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Advocacy around research is important, especially because Down syndrome is the least funded genetic condition by the National Institutes of Health (NIH).
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In March 2018, 21 researchers published a study in the British Journal of Psychiatry called “Impact of cholinesterase inhibitors or memantine on survival in adults with Down syndrome and dementia: clinical cohort study.” The researchers noted that there have been few studies…
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Intellectual and Developmental Disabilities Volume 55, Issue 5 (October 2017) Bone Mass Assessment in a Cohort of Adults With Down Syndrome: A Cross-Sectional Study Article Citation: Ramón Costa, Rosa De Miguel, Clara García, Diego Real de Asúa, Santos Castañeda, Fernando Moldenhauer, and Carmen Suárez(2017) Bone Mass Assessment in…
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Music therapy may not be as common as some of the others we’re used to (PT, OT, and Speech) but it can be just as helpful. Most of the information online seems to be geared toward children – as we often see…
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For me, the highlight of this weekend’s Down Syndrome Affiliates in Action (DSAIA) conference was the presentation is was honored to co-present. For the first time in 18+ months since I first wrote about the racial health disparities that exist in the…
read moreBy; Stephanie Holland I could use a play on words and explain the reason this last post in our A to Z Blogging Challenge is late by saying something about forgetting to do it.The truth is that it’s a difficult subject to…
read moreBy: Stephanie Holland ***Update by Sujata Bardhan, Ph.D., Scientific Program Manager, DS-Connect Registry Coordinator One great example of how the community comes together for the greater good is the collaboration that has happened to create the Down syndrome registry. The funding comes from NIH’s Eunice…
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