Creating a Narrative:
Each of us has a story to tell. By providing a safe place to share our stories with others who understand our trials and triumphs, we empower each other and allow each individual voice to be heard. We also create a history of our experiences for others to learn from.
Sharing and Supporting:
We provide and maintain a place to share pictures and videos of our children that is free from judgement.
The Road We’ve Shared will use different media to help parents and caregivers to communicate with each other. These venues will include online forums, written blog posts and statements, online and interactive radio interviews, and video chats.
Connecting to Professionals:
Our goal is to provide access for parents to discuss issues with experts including doctors, lawyers and policy makers who have influence on our individual lives. We will work with other national groups such as the IDSC, NDSC, NDSS, and the Global Down Syndrome Foundation whenever our goals overlap to enhance the benefit for parents and caregivers of adults.
We collect and disseminate news that is important to parents and caregivers of adults who have Down syndrome. Our weekly newsletter provides access to stories and events from all over the world.
We support efforts to create change that affects adults who have intellectual and developmental disabilities.
- Weekly Newsletter
- Scheduling Radio Shows
- Book Club
Mardra Sikora – (Writing / Marketing / Management)
Marianne Marts – (Professional Advocacy / Sibling Issues)