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The Road We've Shared

The Road We've Shared

The online community by and for parents and caregivers of adults who have Down syndrome

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Blogging From A to Z : Fun At Home with YouTube
A to Z Blogging Challenge 2020

Blogging From A to Z : Fun At Home with YouTube

By Stephanie
On March 28, 2020

We’ve participated in the A to Z Blogging Challenge event every year since 2014. Our themes have included heavy topics that appeal to our guardian audience like advocacy and employment. This year we’ve decided to change it up a bit and instead…

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#shelter in place#social media#YouTube
October On The Road 321 Proud
Community Updates National Down Syndrome Awareness Month 2019

October On The Road 321 Proud

By Stephanie
On September 30, 2019September 29, 2019

October is a big month in our community! Here’s some of what’s going on around here. #321Proud

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##321Proud##BornThisWay#Black Day - The Monster Rock Band#social media#The Road Scholars
I Can Be a Father (With Down Syndrome)
Health Parenting Research

I Can Be a Father (With Down Syndrome)

By Stephanie
On May 22, 2019May 28, 2019

Has your son who’s 5’ 4” (or shorter) told you that he’s going to be an NBA player? Has your beautiful daughter who has weak ankles and knees spoken to you about her dream of becoming a prima ballerina? Does your son…

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#infertility#parents#podcast#research#social change#social media
D is for Dancin’ Dehvin – A to Z Blogging Challenge
A to Z Blogging Challenge 2016

D is for Dancin’ Dehvin – A to Z Blogging Challenge

By Stephanie
On April 5, 2016April 5, 2016

What happens when a video goes viral? A young man gets close to 10,000 likes on his Facebook page and the world gets to see that Down syndrome doesn’t get him down!   Dehvin loves to dance. His mother, Kenya Flowers shares…

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#dancing#social media#viral
Down syndrome in the media Parenting

Sharing Our Stories On Social Media: How Much of My Story Is Mine To Tell?

By Stephanie
On July 27, 2015

What do you do when someone says something that makes you question what you believe? What if the comments give you reason to doubt your vision of yourself and what you are called to do? That’s what happened to me today when…

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#social media
A to Z Blogging Challenge 2015 Down syndrome organizations Guest posts

I is for IDSC Facebook Groups

By Stephanie
On April 10, 2015July 25, 2015

By: Beth Sullivan and Stephanie Holland While we’re talking about collaboration in the Down syndrome community, we have to highlight how social media has made it much easier for individuals to reach out to others in similar situations.  The International Down Syndrome…

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#Facebook#IDSC#social media
Down syndrome in the media Parenting

Why Stories are Important: Lesson 1

By Stephanie
On March 1, 2014July 27, 2015

By Stephanie Holland This month we’ll focus on telling stories about the adults who have Down syndrome that we love.  We’ll also address some of the issues that surround talking in public about our loved ones like: What stories should be told…

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#blogging#social media

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  • New Study: Detecting sleep apnea in adults with Down syndrome using WatchPAT
  • Unwanted: How a Mother Learned to Turn Shame, Grief, and Fear into Purpose, Passion, and Empowerment – A to Z Blogging Challenge
  • The Eternal Son – A to Z Blogging Challenge
  • Shut Away: When Down Syndrome Was a Life Sentence – A to Z Blogging Challenge
  • Reasons to Smile: Celebrating People Living with Down Syndrome – A to Z Blogging Challenge

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  • Home
  • About Us
    • Strategic Planning
  • Justice For Ethan
    • The Civil Case – A Summary
    • Press Release – Ethan Saylor Memorial Film Festival
    • Ethan’s Law – The Movie
    • A Brief Summary of the Story
  • Blog
  • Count Us In!
    • Research: Why Does it Matter to You and Your Families?
  • Research Corner
    • Stress and Depression Linked to Onset of Cognitive Decline and Alzheimer’s Disease in People with Down Syndrome
    • Alzheimer’s Disease – Dr. Brian Chicoine
    • Health & Aging with Down syndrome
    • Vaccine targeting AD with Down syndrome
    • Debate Over Antidementia Drugs
    • All about the Down syndrome registry
  • Down Syndrome in Children’s Literature
    • Children’s Library