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The Road We've Shared

The Road We've Shared

The online community by and for parents and caregivers of adults who have Down syndrome

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    • The Civil Case – A Summary
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Tag: Mardra Sikora

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Community Updates

Let’s Talk About Mardra!

By Stephanie
On August 13, 2015

Do you have someone who can complete your sentences? Someone who is the ying to your yang? Someone who truly makes you a better person?  I do!  Her name is Mardra and it’s her birthday month!

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#birthday#Mardra Sikora
A to Z Blogging Challenge 2015

X – Xenocide

By Stephanie
On May 1, 2015July 23, 2015

By Mardra Sikora Today we are using a word found in the urban dictionary, a term derived from fiction, however the threat is still real. I confess, I have scrapped and re-written this blog about 10 times. It’s not easy stuff to…

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#Mardra Sikora#prenatal testing
A to Z Blogging Challenge 2015 Community Updates

V- Village of Random Acts of Kindness

By Stephanie
On April 28, 2015July 23, 2015

By Mardra Sikora In some ways, we in the Down syndrome community are our own village. This last March 21st organizations and individuals reached out to unknown friends and presented them with random acts of kindness. A lovely introduction to our village….

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#Mardra Sikora#Random Acts of Kindness#WDSD
A to Z Blogging Challenge 2015 Down syndrome organizations Guest posts

Local!

By Stephanie
On April 14, 2015July 23, 2015

Everything Starts at Home  This week there is the Buddy Walk on Washington.  Big things are being done on the big stage.  But, what’s happening at home in your town? The local groups have their feet on the ground, working for the…

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#Mardra Sikora
A to Z Blogging Challenge 2015 Down syndrome organizations

Finding Forever Families!

By Mardra Sikora
On April 7, 2015February 15, 2016

You know, for years (YEARS) I kept a bassinette in my garage, just in case someone left a baby on my doorstep. No one ever did, likely because in this day and age, it doesn’t usually work that way. (Fortunately, I should…

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#adoption#Mardra Sikora
A to Z Blogging Challenge 2015

B – Bloggers Advocates

By Mardra Sikora
On April 2, 2015February 15, 2016

It would be a gross disservice to not include the families who advocate online by sharing their truths as part of the All Together Now collaboration here on The Road. (Of course, you may think we are partial to the blogging cause,…

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#Mardra Sikora
Ethan's Law

Why We Are Still Talking About Ethan Saylor

By Stephanie
On January 6, 2015July 25, 2015

By Mardra Sikora Many of our community, when we hear the name Ethan Saylor, get a battle weary sensation tingling under the skin, and an ache that surrounds our heart. So much for “justice” and all that that implies…I know. I get…

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#Mardra Sikora
Parenting

Oncoming traffic

By Mardra Sikora
On January 23, 2014February 15, 2016

By Mardra and Grown Ups & Downs Would he like a sucker? Today Marcus and I took the pile of annual reports  paperwork to the probate office at the courthouse.  Ooooh, sounds scary doesn’t it? Well, it is a bit intimidating, but everyone…

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#Mardra Sikora

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  • New Study: Detecting sleep apnea in adults with Down syndrome using WatchPAT
  • Unwanted: How a Mother Learned to Turn Shame, Grief, and Fear into Purpose, Passion, and Empowerment – A to Z Blogging Challenge
  • The Eternal Son – A to Z Blogging Challenge
  • Shut Away: When Down Syndrome Was a Life Sentence – A to Z Blogging Challenge
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  • Home
  • About Us
    • Strategic Planning
  • Justice For Ethan
    • The Civil Case – A Summary
    • Press Release – Ethan Saylor Memorial Film Festival
    • Ethan’s Law – The Movie
    • A Brief Summary of the Story
  • Blog
  • Count Us In!
    • Research: Why Does it Matter to You and Your Families?
  • Research Corner
    • Stress and Depression Linked to Onset of Cognitive Decline and Alzheimer’s Disease in People with Down Syndrome
    • Alzheimer’s Disease – Dr. Brian Chicoine
    • Health & Aging with Down syndrome
    • Vaccine targeting AD with Down syndrome
    • Debate Over Antidementia Drugs
    • All about the Down syndrome registry
  • Down Syndrome in Children’s Literature
    • Children’s Library