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The Road We've Shared

The Road We've Shared

The online community by and for parents and caregivers of adults who have Down syndrome

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Author: Mardra Sikora

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U is for Under – A to Z Blogging Challenge
A to Z Blogging Challenge 2016

U is for Under – A to Z Blogging Challenge

By Mardra Sikora
On April 25, 2016May 1, 2016

There are many great “U” words I tossed around for our Music In Me theme. “Unbelievable” came to mind. One of Marcus’ favorite songs is “Unwell” and mine too and we could talk about that for awhile. But no…there are only a…

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#Music in Me#Wonder
R is for the Ring – A to Z Blogging Challenge
A to Z Blogging Challenge 2016

R is for the Ring – A to Z Blogging Challenge

By Mardra Sikora
On April 21, 2016May 1, 2016

“Why do you want to be a writer?” He asked. “Immortality.” I answered. For once, he had no retort. Artists remain alive in our conscious, remain relevant to our soul, always. In different ways, yes. In very personal moments, definitely. In the…

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#art#artists with Down Syndrome#Melissa Riggio#music
P is for Precious – A to Z Challenge
A to Z Blogging Challenge 2016 Guest posts

P is for Precious – A to Z Challenge

By Mardra Sikora
On April 19, 2016May 1, 2016

Guest Blog from Downs Side Up The Power of a Song I recently began thinking about a song by Depeche Mode that was on a compilation CD in my car at the time I was pregnant with Natty. Just another track, probably…

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#art#birth story#Downs Side Up#music
E is for Enjoy the Silence – A to Z Blogging Challenge
A to Z Blogging Challenge 2016

E is for Enjoy the Silence – A to Z Blogging Challenge

By Mardra Sikora
On April 6, 2016May 1, 2016

Don’t you love the irony of songs with silence in the title? Simon and Garfunkle’s “The Sounds of Silence” is a classic.  The recent remake by Disturbed is (perhaps surprisingly) also pretty amazing.   My favorite, “Enjoy the Silence,” came out in…

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B is for Black Day Band – A to Z Blogging Challenge
A to Z Blogging Challenge 2016 Featured

B is for Black Day Band – A to Z Blogging Challenge

By Mardra Sikora
On April 2, 2016March 21, 2020

Marcus Sikora, a young man with Down syndrome is the lead vocalist and co-writer of this song, “We are the Band (Black Day!)” which was inspired by/written with his book, Black Day: The Monster Rock Band. Marcus and Quinn Sikora co-wrote the…

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A to Z Blogging Challenge 2015 Down syndrome organizations

Finding Forever Families!

By Mardra Sikora
On April 7, 2015February 15, 2016

You know, for years (YEARS) I kept a bassinette in my garage, just in case someone left a baby on my doorstep. No one ever did, likely because in this day and age, it doesn’t usually work that way. (Fortunately, I should…

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#adoption#Mardra Sikora
A to Z Blogging Challenge 2015

B – Bloggers Advocates

By Mardra Sikora
On April 2, 2015February 15, 2016

It would be a gross disservice to not include the families who advocate online by sharing their truths as part of the All Together Now collaboration here on The Road. (Of course, you may think we are partial to the blogging cause,…

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#Mardra Sikora
Community Updates National Down Syndrome Awareness Month 2014

About Us!  I’m Mardra

By Mardra Sikora
On October 19, 2014February 15, 2016

Warning: Mardra is a blogger/author/speaker who has forgotten how to give short answers and rarely commits to anything without a prelude of some sort. So how about some fun questions: Who is your favorite Muppet?  First, my prelude: I Love the Facebook Induced…

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Sheltered Workshops

Marcus talks about jobs, old and next

By Mardra Sikora
On October 16, 2014April 28, 2017

*originally posted 5/15/14 by Grown Ups & Downs After graduation Marcus had a job with the family business. When that opportunity changed, we discovered the labyrinth that is vocational services. Having not yet conquered that beast – we are still looking for…

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#jobs
Research

Research and the man voice pill

By Mardra Sikora
On September 8, 2014February 15, 2016

Let me tell you about the “man voice pill.” Marcus and I like to watch old Disney cartoons together, like classic Mickey Mouse and friends. Not black and white, he’s generally only interested in color TV, but classics just the same. One…

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  • New Study: Detecting sleep apnea in adults with Down syndrome using WatchPAT
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  • Home
  • About Us
    • Strategic Planning
  • Justice For Ethan
    • The Civil Case – A Summary
    • Press Release – Ethan Saylor Memorial Film Festival
    • Ethan’s Law – The Movie
    • A Brief Summary of the Story
  • Blog
  • Count Us In!
    • Research: Why Does it Matter to You and Your Families?
  • Research Corner
    • Stress and Depression Linked to Onset of Cognitive Decline and Alzheimer’s Disease in People with Down Syndrome
    • Alzheimer’s Disease – Dr. Brian Chicoine
    • Health & Aging with Down syndrome
    • Vaccine targeting AD with Down syndrome
    • Debate Over Antidementia Drugs
    • All about the Down syndrome registry
  • Down Syndrome in Children’s Literature
    • Children’s Library