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The Road We've Shared

The Road We've Shared

The online community by and for parents and caregivers of adults who have Down syndrome

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Author: Mardra Sikora

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Advocacy Parenting

Professionals listening to a parents perspective

By Mardra Sikora
On March 19, 2014February 15, 2016

In March 2014 the theme on The Road was stories. In this post, originally shared 3/19, Mardra shared a few of the stories she shared with professional service providers who work with developmentally delayed adults.  Speaking of Stories… I’m sharing the mugshot, I mean…

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Parenting

Oncoming traffic

By Mardra Sikora
On January 23, 2014February 15, 2016

By Mardra and Grown Ups & Downs Would he like a sucker? Today Marcus and I took the pile of annual reports  paperwork to the probate office at the courthouse.  Ooooh, sounds scary doesn’t it? Well, it is a bit intimidating, but everyone…

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Community Updates

Let’s get started

By Mardra Sikora
On January 5, 2014February 15, 2016

*Originally published 01/05/14 Not long ago I decided, What the Hell, I’ll do it! I’ll join the…what century is this? and start a blog. Partially because I didn’t see many other folks talking about what we have to talk about: life with an adult child…

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Latest Blogs

  • New Study: Detecting sleep apnea in adults with Down syndrome using WatchPAT
  • Unwanted: How a Mother Learned to Turn Shame, Grief, and Fear into Purpose, Passion, and Empowerment – A to Z Blogging Challenge
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  • Shut Away: When Down Syndrome Was a Life Sentence – A to Z Blogging Challenge
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  • Home
  • About Us
    • Strategic Planning
  • Justice For Ethan
    • The Civil Case – A Summary
    • Press Release – Ethan Saylor Memorial Film Festival
    • Ethan’s Law – The Movie
    • A Brief Summary of the Story
  • Blog
  • Count Us In!
    • Research: Why Does it Matter to You and Your Families?
  • Research Corner
    • Stress and Depression Linked to Onset of Cognitive Decline and Alzheimer’s Disease in People with Down Syndrome
    • Alzheimer’s Disease – Dr. Brian Chicoine
    • Health & Aging with Down syndrome
    • Vaccine targeting AD with Down syndrome
    • Debate Over Antidementia Drugs
    • All about the Down syndrome registry
  • Down Syndrome in Children’s Literature
    • Children’s Library