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The Road We've Shared

The Road We've Shared

The online community by and for parents and caregivers of adults who have Down syndrome

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Category: Advocacy

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Trisomy 21 – A to Z Blogging Challenge
A to Z Blogging Challenge 2020 Advocacy Community Updates Down syndrome in the media Down syndrome organizations Health

Trisomy 21 – A to Z Blogging Challenge

By Stephanie
On April 23, 2020April 20, 2020

Trisomy 21 – a.k.a. Down syndrome. Let’s talk DS.

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#coronavirus#COVID-19#Global Down Syndrome Foundation#health#IDS#LuMind/IDSC#The Adult Down Syndrome Center
Economic Impact Payments and SSI
Advocacy Community Updates

Economic Impact Payments and SSI

By Stephanie
On March 30, 2020March 30, 2020

Safety first. In addition to the medical questions, we’re watching the news regarding “economic impact payments.”

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#Coronavirus Disease#COVID-19#SSI
More Choices: Let Your Voice Be Heard
Advocacy Research Sheltered Workshops

More Choices: Let Your Voice Be Heard

By Stephanie
On June 3, 2019

We’ve talked about sub-minimum wages and the debate surrounding so called “sheltered workshops” several times. We settled on a position that acknowledges the needs of adults with Down syndrome and their caregivers: The good news is that there is a new online…

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#choice#jobs
All About Dental Care: Death, Research and Advocacy
Advocacy Caregiving Health Parenting Research

All About Dental Care: Death, Research and Advocacy

By Stephanie
On May 16, 2019May 28, 2019

The news story A terrible story hit the news recently. It involved a young man who had Down syndrome who died after receiving dental care. The family of the man has been waiting for justice for four years. We see too many…

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#dentist#news#teeth
A to Z Blogging Challenge: Zealotry
A to Z Blogging Challenge 2019 Advocacy

A to Z Blogging Challenge: Zealotry

By Stephanie
On April 30, 2019May 4, 2019

  One final thought on advocacy – try not to let it take over your life.  

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#perspective#rights#values
A to Z Blogging Challenge: Yesteryear
A to Z Blogging Challenge 2019 Advocacy Down syndrome organizations Parenting

A to Z Blogging Challenge: Yesteryear

By Stephanie
On April 29, 2019May 4, 2019

  Today’s advocates are grateful for those who came before us.

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#leaders#past
A to Z Blogging Challenge: ‘Xpectations
A to Z Blogging Challenge 2019 Advocacy Racial disparities

A to Z Blogging Challenge: ‘Xpectations

By Stephanie
On April 27, 2019May 4, 2019

We all have expectations when it comes to our children – with or without a Ds diagnosis. How we handle them is what makes a difference.

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#goals#hopes
A to Z Blogging Challenge: Words
A to Z Blogging Challenge 2019 Advocacy

A to Z Blogging Challenge: Words

By Stephanie
On April 26, 2019May 2, 2019

  Words matter. Our stories matter. Bloggers who tell their truths help our cause in many different ways.

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#blogs#stories#writers
A to Z Blogging Challenge: Vulnerability
A to Z Blogging Challenge 2019 Advocacy Featured Legal Issues Resources

A to Z Blogging Challenge: Vulnerability

By Stephanie
On April 25, 2019March 21, 2020

“Individuals with I/DD are significantly more likely to be victimized (at least two times more likely for violent crimes and four to ten times for abuse and other crimes)…,”

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#abuse#court#law#NCCJD#police
A to Z Blogging Challenge: Underprivileged
A to Z Blogging Challenge 2019 Advocacy Racial disparities Sheltered Workshops

A to Z Blogging Challenge: Underprivileged

By Stephanie
On April 24, 2019April 27, 2019

  If we say we advocate for all people with Down syndrome is that really true? How do we choose which topics to advocate for?

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#health#low income#racial disparities

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  • Home
  • About Us
    • Strategic Planning
  • Justice For Ethan
    • The Civil Case – A Summary
    • Press Release – Ethan Saylor Memorial Film Festival
    • Ethan’s Law – The Movie
    • A Brief Summary of the Story
  • Blog
  • Count Us In!
    • Research: Why Does it Matter to You and Your Families?
  • Research Corner
    • Stress and Depression Linked to Onset of Cognitive Decline and Alzheimer’s Disease in People with Down Syndrome
    • Alzheimer’s Disease – Dr. Brian Chicoine
    • Health & Aging with Down syndrome
    • Vaccine targeting AD with Down syndrome
    • Debate Over Antidementia Drugs
    • All about the Down syndrome registry
  • Down Syndrome in Children’s Literature
    • Children’s Library