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The Road We've Shared

The Road We've Shared

The online community by and for parents and caregivers of adults who have Down syndrome

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Tag: research

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#CountUsIn #UnequalAwareness #DsandRace
Community Updates Racial disparities

#CountUsIn #UnequalAwareness #DsandRace

By Stephanie
On July 21, 2020

Six years ago, a friend of mine sent me a newspaper article that started me on a quest.  The BLM movement has finally gotten the object of my obsession some traction.

read more
#health disparities#race#research
Turkish Study on Food and Nutrition
Caregiving Health Research

Turkish Study on Food and Nutrition

By Stephanie
On May 25, 2020

A recent study from Turkey examined the eating habits of 20 people who have Down syndrome.  Even though the study represents a different culture, it is always interesting to learn from any information that exists, especially when it comes to adults with…

read more
#eating habits#food#health#nutrition#research#Turkey
Research Corner: “Rates, causes, place and predictors of mortality”
Health Research

Research Corner: “Rates, causes, place and predictors of mortality”

By Stephanie
On May 21, 2020May 21, 2020

This new research study looks at the causes of death for people with intellectual disabilities and specifically adults with Down syndrome.  Important facts: “for Down syndrome adults ‘Down syndrome’,and dementia were most common.” [cause of death]  [people with intellectual disabilities] “die younger,…

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#death#health#research
Measuring Relationships – Caregivers and Adults with Down Syndrome
Caregiving Research

Measuring Relationships – Caregivers and Adults with Down Syndrome

By Stephanie
On April 20, 2020

How would your loved one describe his social network? Would you name the same people? Research suggests that we, as parents, consider those who have something to give our loved ones as better friends.

read more
#caregiving#friendships#relationships#research#social networks
Debate Over Antidementia Drugs for Adults with Down Syndrome and Alzheimer’s Disease
Alzheimer's Disease Research

Debate Over Antidementia Drugs for Adults with Down Syndrome and Alzheimer’s Disease

By Stephanie
On March 18, 2020

In March 2018, 21 researchers published a study in the British Journal of Psychiatry called “Impact of cholinesterase inhibitors or memantine on survival in adults with Down syndrome and dementia: clinical cohort study.” The researchers noted that there have been few studies…

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#Alzheimer's disease#health#research
Would You or Your Loved One Want a Cure for Down syndrome?
Featured Research

Would You or Your Loved One Want a Cure for Down syndrome?

By Stephanie
On January 10, 2020March 21, 2020

A new study published in the American Journal on Intellectual  and Developmental Disabilities asks parents how they feel about methods of mitigating or preventing symptoms of Down syndrome.

read more
#cure#research
Got Milk?  Or Water, Lemonade, Fruit Juice Maybe?
Health National Down Syndrome Awareness Month 2019 Research

Got Milk? Or Water, Lemonade, Fruit Juice Maybe?

By Stephanie
On October 30, 2019October 16, 2019

You never know what you might learn in National Down Syndrome Awareness Month, IF you keep your eyes and mind open.

read more
#health#research#voice
New Cancer Screening Suggestions for People With Down Syndrome
Health National Down Syndrome Awareness Month 2019 Research

New Cancer Screening Suggestions for People With Down Syndrome

By Stephanie
On October 23, 2019March 13, 2020

Scientists say people with Down syndrome have different needs when it comes to cancer screening.

read more
#cancer#health#research
New Research Funding Supports ONE Study Aimed At Racial Disparities
Featured National Down Syndrome Awareness Month 2019 Racial disparities Research

New Research Funding Supports ONE Study Aimed At Racial Disparities

By Stephanie
On October 14, 2019March 21, 2020

New INCLUDE funding helps (in a round-about way) address racial health disparities in the Down syndrome community.

read more
#disparities#race#research
Get Moving! Research Shows We Are Inactive
Caregiving Parenting Research

Get Moving! Research Shows We Are Inactive

By Stephanie
On August 6, 2019

A new study released in the Journal of Intellectual Disability Research looks at levels of physical activity in parents of children with and without Down syndrome.

read more
#exercise#parenting#research

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  • Home
  • About Us
    • Strategic Planning
  • Justice For Ethan
    • The Civil Case – A Summary
    • Press Release – Ethan Saylor Memorial Film Festival
    • Ethan’s Law – The Movie
    • A Brief Summary of the Story
  • Blog
  • Count Us In!
    • Research: Why Does it Matter to You and Your Families?
  • Research Corner
    • Stress and Depression Linked to Onset of Cognitive Decline and Alzheimer’s Disease in People with Down Syndrome
    • Alzheimer’s Disease – Dr. Brian Chicoine
    • Health & Aging with Down syndrome
    • Vaccine targeting AD with Down syndrome
    • Debate Over Antidementia Drugs
    • All about the Down syndrome registry
  • Down Syndrome in Children’s Literature
    • Children’s Library