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The Road We've Shared

The Road We've Shared

The online community by and for parents and caregivers of adults who have Down syndrome

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A to Z Blogging Challenge – Down Syndrome in the Media – Just Like Other Daughters
A to Z Blogging Challenge 2021 Down syndrome in the media

A to Z Blogging Challenge – Down Syndrome in the Media – Just Like Other Daughters

By Stephanie
On April 4, 2021March 31, 2021

Another way people learn about Down syndrome is through literature. We’ll talk about memoires later in the month. Today, let’s talk about fiction. Down syndrome in children’s literature is an area that I talk a lot about- but today I want to…

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#fiction#literature#marriage#parenting#Story Club
Get Moving! Research Shows We Are Inactive
Caregiving Parenting Research

Get Moving! Research Shows We Are Inactive

By Stephanie
On August 6, 2019

A new study released in the Journal of Intellectual Disability Research looks at levels of physical activity in parents of children with and without Down syndrome.

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#exercise#parenting#research
April A to Z Blogging Challenge: Friends and Family
A to Z Blogging Challenge 2019 Advocacy Parenting

April A to Z Blogging Challenge: Friends and Family

By Stephanie
On April 6, 2019April 17, 2019

  Perhaps our first taste of advocacy happens when we choose to tell our friends and family that our child has Down syndrome.

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#advocacy#language#parenting
Alzheimer's Disease

How Do We Face The Scary Truth? Down Syndrome and Dementia: A Caregiving Issue That Needs Our Attention

By Stephanie
On May 21, 2015July 23, 2015

By: Stephanie Holland Parenting, of all kinds, requires hard work and determination. We all want the best for our children and try not to let what might go wrong keep us from living our best today. Sometimes, we need to put our…

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#caregiving#health & wellbeing#medical issues#parenting

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  • New Study: Detecting sleep apnea in adults with Down syndrome using WatchPAT
  • Unwanted: How a Mother Learned to Turn Shame, Grief, and Fear into Purpose, Passion, and Empowerment – A to Z Blogging Challenge
  • The Eternal Son – A to Z Blogging Challenge
  • Shut Away: When Down Syndrome Was a Life Sentence – A to Z Blogging Challenge
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  • Home
  • About Us
    • Strategic Planning
  • Justice For Ethan
    • The Civil Case – A Summary
    • Press Release – Ethan Saylor Memorial Film Festival
    • Ethan’s Law – The Movie
    • A Brief Summary of the Story
  • Blog
  • Count Us In!
    • Research: Why Does it Matter to You and Your Families?
  • Research Corner
    • Stress and Depression Linked to Onset of Cognitive Decline and Alzheimer’s Disease in People with Down Syndrome
    • Alzheimer’s Disease – Dr. Brian Chicoine
    • Health & Aging with Down syndrome
    • Vaccine targeting AD with Down syndrome
    • Debate Over Antidementia Drugs
    • All about the Down syndrome registry
  • Down Syndrome in Children’s Literature
    • Children’s Library