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The Road We've Shared

The Road We've Shared

The online community by and for parents and caregivers of adults who have Down syndrome

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DSTV Wednesday – Life Goes On
Down syndrome in the media National Down Syndrome Awareness Month 2016

DSTV Wednesday – Life Goes On

By Stephanie
On October 5, 2016October 4, 2016

In our exploration of Down syndrome in film, we will spend some time looking at portrayals on the small screen. Wednesdays will be devoted to how television has been used to raise awareness. Today, we’ll start at the most appropriate place –…

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#Chris Burke#Life Goes On#television
C is for Chris Burke’s 50th Birthday Video – A to Z Blogging Challenge
A to Z Blogging Challenge 2016

C is for Chris Burke’s 50th Birthday Video – A to Z Blogging Challenge

By Stephanie
On April 4, 2016March 29, 2016

Here on The Road, we LOVE actor, singer, advocate and pioneer, Chris Burke! In August last year, we celebrated his 50th birthday and his retirement from the NDSS.   Mardra wrote a letter to Chris, which was published by the Huffington Post…

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##ChrisBurke50#Chris Burke
Advocacy Community Updates Down syndrome in the media

#ChrisBurke50 – Happy Birthday Chris!

By Stephanie
On August 26, 2015August 26, 2015

Today we celebrate the 50th birthday of a pioneer in Down syndrome advocacy. Chris Burke became famous with his role as “Corky” in Life Goes On – but he didn’t stop there. His music and his message have been a source of…

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##ChrisBurke50#celebration#Chris Burke#Ethan Saylor#racial disparities
Community Updates Ds Road Show

Time to Celebrate Creativity in the Down Syndrome Community!

By Stephanie
On August 17, 2015August 17, 2015

The Ds Road Show will celebrate creativity within the Down syndrome community and start Down syndrome Awareness Month off with some flair! Submit your entry today! http://dsroadshow.theroadweveshared.com/

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#art#Chris Burke#creativity
Down syndrome in the media Ds Road Show

Is There An ACTOR In The House? : Adults Who Have Down Syndrome Take The Stage

By Stephanie
On May 25, 2015April 3, 2021

By: Stephanie Holland   One of the ways society is finding out more about Down syndrome is through television and film. While healthy debates within our community critique the message of stories and methods used to tell it, we can all agree…

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#actors#Chris Burke#Glee

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  • New Study: Detecting sleep apnea in adults with Down syndrome using WatchPAT
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  • Home
  • About Us
    • Strategic Planning
  • Justice For Ethan
    • The Civil Case – A Summary
    • Press Release – Ethan Saylor Memorial Film Festival
    • Ethan’s Law – The Movie
    • A Brief Summary of the Story
  • Blog
  • Count Us In!
    • Research: Why Does it Matter to You and Your Families?
  • Research Corner
    • Stress and Depression Linked to Onset of Cognitive Decline and Alzheimer’s Disease in People with Down Syndrome
    • Alzheimer’s Disease – Dr. Brian Chicoine
    • Health & Aging with Down syndrome
    • Vaccine targeting AD with Down syndrome
    • Debate Over Antidementia Drugs
    • All about the Down syndrome registry
  • Down Syndrome in Children’s Literature
    • Children’s Library