Adults who have Down syndrome take the stage

One of the ways society is finding out more about Down syndrome is through television and film. While healthy debates within our community critique the message of stories and methods used to tell it, we can all agree that the performances are priceless! We’ll be exploring how the arts allow adults with Down syndrome express their creativity and raise awareness as we prepare for the Ds Road Show in October!

Nothing Sheltered About It

The recent release of “Where Hope Grows” has sparked a discussion in certain spaces regarding what constitutes a positive representation of Down syndrome. The theory behind critical media studies uses a disability lens to measure the messages, imaging, and feelings evoked from a piece. There are bound to be ways to improve any message, but ultimately art is an expression of the artist. How it is interpreted is based on lots of different things, including the current social climate. Art is also a reflection of the beliefs and norms of the time.The amazing work David DeSanctis did in Where Hope Grows should be appreciated. If nothing else, it’s a great job if you can get it! 
The reference to acting as work reminds me of listening to another of the Down syndrome community’s top actors – the first to be seen and appreciated by a large, diverse audience – Chris Burke. I’ve heard him speak on several occasions and he was always adamant about how grateful he was to be a working actor.Everyone knows Chris for Life Goes On, I’m sure there are many fans who still call him Corky, but did you know he also made a guest appearance on E.R. ?

Expect The Unexpected

Some of the story lines that include actors with Ds are to be expected. Glee has used two actresses to expose some of the everyday discrimination that goes on in our schools, and how those situations might be addressed. My favorite segment appeared in season one, when Robin Trocki was playing Coach Sue Sylvester’s sister, Jean. [Episode 17, Bad Reputation]
The first time we see Jean in this episode, she’s sitting at a table talking to her sister.Sue: I never really understood how hard it is to be laughed at, particularly in slow motion. I try to make it seem like nothing can touch me, but boy. Jean I’m so sorry you ever felt that way. I’m sorry I didn’t protect you more.

Robin Trocki in Glee Season 1 Episode 17


Robin Trocki in Glee Season 1 Episode 17

Jean: Remember what we used to do Sue? Whenever I got sad we helped at the animal shelter to give back.Sue: Because there’s always someone who’s got it worse than you do.

Robin Trocki in Glee Season 1 Episode 17


After Sue resolves her dilemma she returns to her sister:Sue: After all these years, how is it that you still know so much more about everything than I do?Jean: I’m the smart one!Unfortunately, it’s been reported that Robin was written out of the show because of advanced Alzheimer’s disease after appearing in only four episodes.

Jamie Brewer’s part as Adelaide on American Horror Story – Coven is anything but typical. Still, we see a familiar theme in Episode 4 – Halloween: Part 1 [(26 Oct. 2011) Director: David Semel Writer: James Wong]. 

Addie knows what she wants to be for Halloween: “Make me a pretty girl, like you Violet.”

When her mother discovers the make-up on her face, she screams hysterically at her to take it off. Brewer makes a convincing emotional response.Addie: I wanna be a pretty girl!…I don’t wanna be Snoopy! I wanna be a pretty girl!

Jamie Brewer as Adelaide on American Horror Story

In this short clip from her Ted talk, [Escape from labels. Be free, be different: Sarah Gordy at TEDxYouth@Hackney] Sarah Gordy talks about the stereotypical “girl with an over protective mother” roles.
Yes, Sarah, there are other stories out there! 
One of my all time favorite stories is this one starring Luke Zimmerman – Tom Bowman on ABC Family’s The Secret Life of the American Teenager. He had a frequently recurring part, appearing in 90 episodes over 5 seasons. In this series of clips from Season 1, Episode 9 “Slice of Life” [Aug 26, 2008] Tom cooks up a little mischief.
There are several ways to look at this story line. Do you see stereotypes? Is the moral of the story too obvious? Did you laugh? Did it remind you of someone?

The Show Goes On

Lauren Potter is best known for her portrayal of Becky Jackson on Glee. Did you know that she, along with Luke Spinelli and Jared Kozak, worked on a three-part web series called Leader of the Pack ?
The new format may be just what the doctor ordered for awareness and creativity. Short films are another promising venue for actors with disabilities. Festivals, like Sprout are becoming more popular. One short film that tackles pre-concieved notions is The Interviewer staring Gerard Odwyer.
[You can watch the whole 12 min film by Bus Stop Films here.]
The Interviewer challenges assumptions, even those sometimes made by parents of people with Down syndrome.
A rising star that we’re keeping a close eye on is our friend Connor R, Long. His portrayal of Radek in the 1945 period piece Menschen (2013) is amazing. Watch him here in a promotion piece for his latest project, Learning to Drive.
You’re already a famous super star in our eyes Connor! Keep up the great work!

Roll It!

These ten scenes help us get a better sense of what’s out there so far. It’s taken a long time to get here and we’ve only just begun. Getting accurate and equal representation in the media is never easy for any minority group. The actors, creators, and everyone involved in these projects are to be commended for taking a step.I’ll leave you with two final thoughts:Did anyone notice the lack of diversity in the actors who are getting recognized?While these artists are considered professionals, at the top of the Ds celebrity chain, those of us at The Road believe they represent the tip of the iceberg when it comes to talent in our community.If your loved one has caught the acting bug, please consider joining us for the Ds Road Show. The whole purpose of this three day virtual event is to showcase talent and celebrate creativity. You never know when the next star might be discovered! We’re also looking for volunteers and sponsors to help us create a spectacular event to kick of National Down Syndrome Month in October. Email us to help support The Show.

That’s a wrap!

Ds Road Show from The Road We've Shared


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