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The Road We've Shared

The Road We've Shared

The online community by and for parents and caregivers of adults who have Down syndrome

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Down syndrome in the media National Down Syndrome Awareness Month 2016

Behind the Scenes Tuesday- Down Syndrome in Arts & Media

By Stephanie
On October 11, 2016October 9, 2016

  When someone with Down syndrome wants to break into the acting biz, the best place to find an agent who “gets it” is  Kazarian/Measures/Ruskin & Associates (KMR) and Gail Williamson’s Down Syndrome in Arts & Media (DSiAM).

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#actors#Disability services#Gail Williamson
M is for Music Therapy – A to Z Blogging Challenge
A to Z Blogging Challenge 2016

M is for Music Therapy – A to Z Blogging Challenge

By Stephanie
On April 15, 2016April 5, 2016

Music therapy may not be as common as some of the others we’re used to (PT, OT, and Speech) but it can be just as helpful. Most of the information online seems to be geared toward children – as we often see…

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#Disability services#research#therapy
Responding To The Community – Born This Way at the 321 eConference
Advocacy Resources WDSD

Responding To The Community – Born This Way at the 321 eConference

By Stephanie
On March 17, 2016March 18, 2016

When Born This Way aired on the A&E Network, it prompted mixed emotions from the Down syndrome parent community.  Strong emotions. I pondered long and hard about why those emotions came to the surface, and how we could help bridge the gap…

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##BornThisWay#321 eConference#Disability services
Wait Lists and Disability Rights as Civil Rights
Advocacy

Wait Lists and Disability Rights as Civil Rights

By Stephanie
On January 20, 2016April 10, 2016

“Waiting lists.” Is your loved on one? Have you heard of them? Do you know what they are? Nolo, a website that provides legal information, tells us where the term “waivers” comes from. “Historically, Medicaid-eligible people who needed help with things like…

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#Disability services
A to Z Blogging Challenge 2015 Caregiving

W – Work that Needs Doing

By Stephanie
On April 29, 2015July 23, 2015

By: Stephanie Holland Those of us with adult children know that we, as a society, have come a long way in terms of advocacy and services for people with intellectual and developmental disabilities (ID/DD);  but we also know that we still have…

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#Disability services#Down syndrome organizations

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  • Home
  • About Us
    • Strategic Planning
  • Justice For Ethan
    • The Civil Case – A Summary
    • Press Release – Ethan Saylor Memorial Film Festival
    • Ethan’s Law – The Movie
    • A Brief Summary of the Story
  • Blog
  • Count Us In!
    • Research: Why Does it Matter to You and Your Families?
  • Research Corner
    • Stress and Depression Linked to Onset of Cognitive Decline and Alzheimer’s Disease in People with Down Syndrome
    • Alzheimer’s Disease – Dr. Brian Chicoine
    • Health & Aging with Down syndrome
    • Vaccine targeting AD with Down syndrome
    • Debate Over Antidementia Drugs
    • All about the Down syndrome registry
  • Down Syndrome in Children’s Literature
    • Children’s Library