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The Road We've Shared

The Road We've Shared

The online community by and for parents and caregivers of adults who have Down syndrome

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Category: WDSD

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#WDSD22   World Down Syndrome Day 2022
WDSD

#WDSD22 World Down Syndrome Day 2022

By Stephanie
On March 20, 2022

Happy WDSD to all our friends with Down syndrome and their families! We’ve been quiet for a while now, but we’ve been working behind the scenes.  This year we’ve been updating our literature lists and planning to cover new books in our…

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S is for Storyteller Marcus Sikora
A to Z Blogging Challenge 2017 WDSD

S is for Storyteller Marcus Sikora

By Stephanie
On April 23, 2017

Marcus knows about storytelling and last month he told the world about it at the United Nations.    

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##WDSD17#United Nations
Responding To The Community – Born This Way at the 321 eConference
Advocacy Resources WDSD

Responding To The Community – Born This Way at the 321 eConference

By Stephanie
On March 17, 2016March 18, 2016

When Born This Way aired on the A&E Network, it prompted mixed emotions from the Down syndrome parent community.  Strong emotions. I pondered long and hard about why those emotions came to the surface, and how we could help bridge the gap…

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##BornThisWay#321 eConference#Disability services
#Jobs Matter & Giveaway!
Jobs WDSD

#Jobs Matter & Giveaway!

By Stephanie
On March 14, 2016March 18, 2016

One of our favorite, and most popular resources is our List.ly list of businesses owned by adults who have Down syndrome.  People are willing and excited to support our young entrepreneurs!

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#disability#entrepreneurs#jobs#sheltered workshops
Community Updates WDSD

Giving back on #WDSD15

By Stephanie
On February 19, 2015July 25, 2015

By: Stephanie Holland World Down Syndrome Day 2015 This year, we’re changing the focus a bit on March 21st.  For the 10th anniversary of this special day, we here at The Road are participating with seven other Down syndrome groups who created…

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#Random Acts of Kindness
Community Updates WDSD

Random Acts of Kindness

By Stephanie
On February 7, 2015July 25, 2015

By: Stephanie Holland This year, we’ll be celebrating World Down Syndrome Day on March 21st (3-21) with the seven national Down syndrome organizations by completing random acts of kindness. We’ve started a list of possibilities that our adults who have Down syndrome…

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#Random Acts of Kindness
WDSD

This Kind of Love – IDSC WDSD2014 Blog Hop

By Stephanie
On April 17, 2014February 15, 2016

THIS KIND OF LOVE… One of our very first pictures together…. never before (and never again) published Yeah, we’re Maryland born and raised. “Team mates” from the very start. STARTS AT FIRST SIGHT! This kind of love… My graduation from Middle Tennessee…

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WDSD

Why I write – or – my WDSD Hangover

By Stephanie
On April 17, 2014February 15, 2016

In preparation for our 321 eConference session yesterday, “Finding Support via Social Media – Blogging and Internet Communities” – I did a lot of thinking about WHY I choose to share my story on various social media outlets.   In the 45-minute…

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WDSD

The United Nations on WDSD14

By Stephanie
On April 17, 2014December 30, 2015

Health and wellbeing – Access and equality for all on the occasion of World Down Syndrome Day For those of us on The Road, WDSD was…  hectic to say the least.   Hectic in a GOOD way!  I didn’t want the month…

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WDSD

WORLD DOWN SYNDROME DAY 2014

By Stephanie
On March 25, 2014February 15, 2016

We hope you all enjoy the video tribute we put together of all our friends on this special day.  Disclaimer:  All of these pictures were shared with us on Josh’s Facebook page and because we have sooooo many friends, the video is just…

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  • New Study: Detecting sleep apnea in adults with Down syndrome using WatchPAT
  • Unwanted: How a Mother Learned to Turn Shame, Grief, and Fear into Purpose, Passion, and Empowerment – A to Z Blogging Challenge
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  • Home
  • About Us
    • Strategic Planning
  • Justice For Ethan
    • The Civil Case – A Summary
    • Press Release – Ethan Saylor Memorial Film Festival
    • Ethan’s Law – The Movie
    • A Brief Summary of the Story
  • Blog
  • Count Us In!
    • Research: Why Does it Matter to You and Your Families?
  • Research Corner
    • Stress and Depression Linked to Onset of Cognitive Decline and Alzheimer’s Disease in People with Down Syndrome
    • Alzheimer’s Disease – Dr. Brian Chicoine
    • Health & Aging with Down syndrome
    • Vaccine targeting AD with Down syndrome
    • Debate Over Antidementia Drugs
    • All about the Down syndrome registry
  • Down Syndrome in Children’s Literature
    • Children’s Library