Health and wellbeing – Access and equality for all on the occasion of World Down Syndrome Day
I was personally excited to see that one of Josh’s doctors from when we lived in Maryland was speaking. Dr. George Capone from the Kennedy Kreiger Institute Down syndrome Clinic in Baltimore, MD is one of my personal heroes.
He talked about guidelines that exist for newborns, and for children. These guidelines are published by the American Academy of Pediatrics. Dr. Capone mentioned that they were developed in 1994 and revised in 2001 and 2011. They apparently try to update them regularly.
The only thing is – they stop at age 21.
“age related issues are accelerated in this population” “when aging actually begins is a good question”… - Dr. George Capone
Also – I’ve started worrying about how we’ll address the medical issues of aging without having access to any specialists where we are. I never really took the time to think about “aging” as another phase in our lives where we would need to seek out specialists……
I’m hoping that this means Dr. Capone and his fabulous clinic will extend their services to older adults!
Four full hours of information
Self advocate “representing” adults with #DownSyndrome at the UN! #WDSD14 pic.twitter.com/UYhqXYv0kM
— Stephanie Holland (@walkersvillemom) March 21, 2014