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The Road We've Shared

The Road We've Shared

The online community by and for parents and caregivers of adults who have Down syndrome

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Tag: Ethan Saylor

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April A to Z Blogging Challenge: Education
A to Z Blogging Challenge 2019 Advocacy Ethan's Law The Road Scholars

April A to Z Blogging Challenge: Education

By Stephanie
On April 5, 2019April 16, 2019

A great deal  of  advocacy work has centered on K-12 education. Today advocates are looking at new ways to define education for adults with intellectual disabilities.

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#Ethan Saylor#federal investigation#IDEA#Post-secondary education#special education#The Road Scholars#Think College
The Ethan Saylor Alliance – Creating Jobs Through Legislation
A to Z Blogging Challenge 2017 Jobs

The Ethan Saylor Alliance – Creating Jobs Through Legislation

By Stephanie
On April 6, 2017April 2, 2017

Not only did the Ethan Saylor Alliance create better training for law enforcement, it is also creating jobs for people with intellectual and developmental disabilities! Here’s a bit about how it works.

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#Ethan Saylor
Announcing! The Ethan Saylor Memorial Film Festival
Community Updates Ethan's Law Film Festival

Announcing! The Ethan Saylor Memorial Film Festival

By Stephanie
On October 25, 2016October 25, 2016

We are excited to announce that The Road We’ve Shared and The International Down Syndrome Coalition (IDSC) are hosting the first annual Ethan Saylor Memorial Film Festival!

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##JusticeForEthan#Dakota's Pride 2.0#Ethan Saylor#Ethan's Law#Kelly's Hollywood#Learning to Drive#Spring Break Zombie Massacre
Ethan’s Law Saturday – Interview with Edward Rhodes
Down syndrome in the media Ethan's Law National Down Syndrome Awareness Month 2016

Ethan’s Law Saturday – Interview with Edward Rhodes

By Stephanie
On October 8, 2016October 8, 2016

Our Saturday blogs this month will be devoted to documentary film about Ethan Saylor  – Ethan’s Law. For today we literally went to the source and asked the director Edward Rhodes a few questions.

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##JusticeForEthan#documentary#Edward Rhodes#Ethan Saylor#Ethan's Law
January: Joy, Sorrow, & Hugs
Community Updates Ethan's Law

January: Joy, Sorrow, & Hugs

By Stephanie
On January 8, 2016

The first month of the year. New beginnings. Resolutions. Reminders…. January is a month like no other here on The Road. It’s brings a mix of emotions. Some are still celebrating the holidays; some struggle with feelings of loss and pain.

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#anniversary#Ethan Saylor#January
Advocacy Community Updates Down syndrome in the media

#ChrisBurke50 – Happy Birthday Chris!

By Stephanie
On August 26, 2015August 26, 2015

Today we celebrate the 50th birthday of a pioneer in Down syndrome advocacy. Chris Burke became famous with his role as “Corky” in Life Goes On – but he didn’t stop there. His music and his message have been a source of…

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##ChrisBurke50#celebration#Chris Burke#Ethan Saylor#racial disparities
Community Updates Down syndrome organizations Ethan's Law Racial disparities

Phoenix Recap – NDSC15

By Stephanie
On July 2, 2015July 23, 2015

By: Stephanie Holland This year the annual NDSC convention was held in sunny Phoenix, Arizona.  The 100+ degree weather made things outside of the conference venue a bit sticky, but inside everything was “cool.”  If I had to sum up my own…

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#321 eLearning#Beverly Johnson#Black Day - The Monster Rock Band#Ethan Saylor#NDSC
Down syndrome in the media Ethan's Law

A Week of Milestones on the Road to #JusticeForEthan

By Stephanie
On May 16, 2015July 23, 2015

By: Stephanie Holland For two long years, Patti Saylor has advocated for change after the death of her precious Ethan. It has meant long hours, countless miles of travel and hours in meetings. The emotional toll of reliving that terrible evening over…

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#Ethan Saylor
Ethan's Law

#Toast4Ethan

By Stephanie
On January 9, 2014July 25, 2015

By Stephanie Holland I’ve been thinking a lot about the word “legacy” today.   It seems so incredible to me that we could be talking about Ethan – someone I knew – someone’s child, grandchild, nephew, brother – someone the same age…

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#Ethan Saylor#legacy

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Latest Blogs

  • New Study: Detecting sleep apnea in adults with Down syndrome using WatchPAT
  • Unwanted: How a Mother Learned to Turn Shame, Grief, and Fear into Purpose, Passion, and Empowerment – A to Z Blogging Challenge
  • The Eternal Son – A to Z Blogging Challenge
  • Shut Away: When Down Syndrome Was a Life Sentence – A to Z Blogging Challenge
  • Reasons to Smile: Celebrating People Living with Down Syndrome – A to Z Blogging Challenge

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  • Home
  • About Us
    • Strategic Planning
  • Justice For Ethan
    • The Civil Case – A Summary
    • Press Release – Ethan Saylor Memorial Film Festival
    • Ethan’s Law – The Movie
    • A Brief Summary of the Story
  • Blog
  • Count Us In!
    • Research: Why Does it Matter to You and Your Families?
  • Research Corner
    • Stress and Depression Linked to Onset of Cognitive Decline and Alzheimer’s Disease in People with Down Syndrome
    • Alzheimer’s Disease – Dr. Brian Chicoine
    • Health & Aging with Down syndrome
    • Vaccine targeting AD with Down syndrome
    • Debate Over Antidementia Drugs
    • All about the Down syndrome registry
  • Down Syndrome in Children’s Literature
    • Children’s Library