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The Road We've Shared

The Road We've Shared

The online community by and for parents and caregivers of adults who have Down syndrome

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Category: Ethan’s Law

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April A to Z Blogging Challenge: Public Policy
A to Z Blogging Challenge 2019 Advocacy Disability Services Ethan's Law Resources

April A to Z Blogging Challenge: Public Policy

By Stephanie
On April 18, 2019April 22, 2019

Advocacy aimed at public policy initiatives have broad, long-term goals. “People with disabilities want to live, learn, work, pay taxes, and be productive and fully included in their communities.”

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#dental care#direct support workers#Ethan's Law#Medicaid#public policy#SSI#wait lists
April A to Z Blogging Challenge: Education
A to Z Blogging Challenge 2019 Advocacy Ethan's Law The Road Scholars

April A to Z Blogging Challenge: Education

By Stephanie
On April 5, 2019April 16, 2019

A great deal  of  advocacy work has centered on K-12 education. Today advocates are looking at new ways to define education for adults with intellectual disabilities.

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#Ethan Saylor#federal investigation#IDEA#Post-secondary education#special education#The Road Scholars#Think College
My Thoughts on the Ethan Saylor Memorial Film Festival
Community Updates Down syndrome in the media Ethan's Law Film Festival

My Thoughts on the Ethan Saylor Memorial Film Festival

By Stephanie
On January 20, 2017

As my mind gets out of constant planning mode, and back into the everyday groove, I wanted to take a moment and share a few thoughts on last weekend’s festivities.

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When Going To The Movies Is An Act of Defiance – Taking Back Our Joy
Advocacy Down syndrome in the media Ethan's Law Film Festival

When Going To The Movies Is An Act of Defiance – Taking Back Our Joy

By Stephanie
On January 4, 2017January 4, 2017

Why would you plan an event to honor Ethan at a movie theater of all places? It’s a valid question. Since Ethan’s death, movie theaters have become traumascapes – places that trigger anxiety and depression – for many people, myself included.

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##JusticeForEthan##SaylorFilmFest##TakingBackOurJoy
Making Others See – Politics in the Down Syndrome Community
Advocacy Ethan's Law Film Festival

Making Others See – Politics in the Down Syndrome Community

By Stephanie
On November 5, 2016November 17, 2016

All too often the Down syndrome community specifically, and the disability community in general, are left out of important political debates. We are typically impacted by the same civil rights issues as other minority groups, sometimes even more so because of the…

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#politics#voting
Announcing! The Ethan Saylor Memorial Film Festival
Community Updates Ethan's Law Film Festival

Announcing! The Ethan Saylor Memorial Film Festival

By Stephanie
On October 25, 2016October 25, 2016

We are excited to announce that The Road We’ve Shared and The International Down Syndrome Coalition (IDSC) are hosting the first annual Ethan Saylor Memorial Film Festival!

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##JusticeForEthan#Dakota's Pride 2.0#Ethan Saylor#Ethan's Law#Kelly's Hollywood#Learning to Drive#Spring Break Zombie Massacre
Ethan’s Law Saturday – Interview with Edward Rhodes
Down syndrome in the media Ethan's Law National Down Syndrome Awareness Month 2016

Ethan’s Law Saturday – Interview with Edward Rhodes

By Stephanie
On October 8, 2016October 8, 2016

Our Saturday blogs this month will be devoted to documentary film about Ethan Saylor  – Ethan’s Law. For today we literally went to the source and asked the director Edward Rhodes a few questions.

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##JusticeForEthan#documentary#Edward Rhodes#Ethan Saylor#Ethan's Law
NCCJD – Advocating For Justice in the Intellectual Disability Community
Advocacy Disability Services Ethan's Law Legal Issues Resources

NCCJD – Advocating For Justice in the Intellectual Disability Community

By Stephanie
On February 26, 2016February 27, 2016

There is no shortage of opportunities for us to help create change in our world today.  We all have our reasons for why we choose to support (or not) a particular issue. When it comes to advocacy, we are usually motivated by…

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#criminal justice#Ethan's Law#intellectual disability#NCCJD#The Arc
January: Joy, Sorrow, & Hugs
Community Updates Ethan's Law

January: Joy, Sorrow, & Hugs

By Stephanie
On January 8, 2016

The first month of the year. New beginnings. Resolutions. Reminders…. January is a month like no other here on The Road. It’s brings a mix of emotions. Some are still celebrating the holidays; some struggle with feelings of loss and pain.

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#anniversary#Ethan Saylor#January
Advocacy Ethan's Law Legal Issues

Timothy Smith and Ethan Saylor – 2 Deaths by Prone Restraint

By Stephanie
On October 18, 2015October 19, 2015

          Chambersburg, Pennsylvania is less than an hour’s drive from Frederick, Maryland  – the place where Ethan Saylor was killed in January, 2013. In Chambersburg, on September 9, 2010, another from our community was taken from his family….

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#asphyxiation#restraint#Tim Smith

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  • New Study: Detecting sleep apnea in adults with Down syndrome using WatchPAT
  • Unwanted: How a Mother Learned to Turn Shame, Grief, and Fear into Purpose, Passion, and Empowerment – A to Z Blogging Challenge
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  • Home
  • About Us
    • Strategic Planning
  • Justice For Ethan
    • The Civil Case – A Summary
    • Press Release – Ethan Saylor Memorial Film Festival
    • Ethan’s Law – The Movie
    • A Brief Summary of the Story
  • Blog
  • Count Us In!
    • Research: Why Does it Matter to You and Your Families?
  • Research Corner
    • Stress and Depression Linked to Onset of Cognitive Decline and Alzheimer’s Disease in People with Down Syndrome
    • Alzheimer’s Disease – Dr. Brian Chicoine
    • Health & Aging with Down syndrome
    • Vaccine targeting AD with Down syndrome
    • Debate Over Antidementia Drugs
    • All about the Down syndrome registry
  • Down Syndrome in Children’s Literature
    • Children’s Library