If we say we advocate for all people with Down syndrome is that really true? How do we choose which topics to advocate for?
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Advocacy around research is important, especially because Down syndrome is the least funded genetic condition by the National Institutes of Health (NIH).
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When bad things happen to good people, we have two choices. 1) Get angry, condemn the perpetrator and move on. 2) Take a hard look at the systemic problems that allowed the perpetrator to get away with it in the first place…
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For me, the highlight of this weekend’s Down Syndrome Affiliates in Action (DSAIA) conference was the presentation is was honored to co-present. For the first time in 18+ months since I first wrote about the racial health disparities that exist in the…
read moreToday we celebrate the 50th birthday of a pioneer in Down syndrome advocacy. Chris Burke became famous with his role as “Corky” in Life Goes On – but he didn’t stop there. His music and his message have been a source of…
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