One final thought on advocacy – try not to let it take over your life.
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Today’s advocates are grateful for those who came before us.
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We all have expectations when it comes to our children – with or without a Ds diagnosis. How we handle them is what makes a difference.
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Words matter. Our stories matter. Bloggers who tell their truths help our cause in many different ways.
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“Individuals with I/DD are significantly more likely to be victimized (at least two times more likely for violent crimes and four to ten times for abuse and other crimes)…,”
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If we say we advocate for all people with Down syndrome is that really true? How do we choose which topics to advocate for?
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“With assessment and appropriate interventions, the use of assistive products can be not only enabling and empowering, but also transformative in facilitating new life skills and opportunities for people with ID.” – Boot, et. al.
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People who care for others have to take care of themselves to avoid caregiver burnout and other emotional and physical problems.
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“Am I my brother’s keeper?” or “He ain’t heavy, he’s my brother.”
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Advocacy, at its core, is work done to make it possible for all of us to be ourselves.
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