About Us

We’re moms, dads, sisters, brothers. We’re caregivers. 

We love someone who has Down syndrome.


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Our story

We came together in the wake of Ethan Saylor’s unnecessary death.

We stay together because our loved ones have unique needs that are often left out of the Ds narrative.

We’re a community of caregivers, doing our best to stay informed
so that we can help our loved ones live their best lives.