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The Road We've Shared

The Road We've Shared

The online community by and for parents and caregivers of adults who have Down syndrome

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New Study Looks at Comorbid Conditions for Patients with Down Syndrome
Health Research

New Study Looks at Comorbid Conditions for Patients with Down Syndrome

By Stephanie
On May 8, 2021

Team headed by Dr. Brian Chicoine from the Adult Down Syndrome Center in Park Ridge, IL, reviewed records from “up to 28 years of data, compiled from 6078 individuals with DS” and a similar group without Ds, to determine what conditions are more prevalent in the Ds population.  

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#health
Turkish Study on Food and Nutrition
Caregiving Health Research

Turkish Study on Food and Nutrition

By Stephanie
On May 25, 2020

A recent study from Turkey examined the eating habits of 20 people who have Down syndrome.  Even though the study represents a different culture, it is always interesting to learn from any information that exists, especially when it comes to adults with…

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#eating habits#food#health#nutrition#research#Turkey
Research Corner: “Rates, causes, place and predictors of mortality”
Health Research

Research Corner: “Rates, causes, place and predictors of mortality”

By Stephanie
On May 21, 2020May 21, 2020

This new research study looks at the causes of death for people with intellectual disabilities and specifically adults with Down syndrome.  Important facts: “for Down syndrome adults ‘Down syndrome’,and dementia were most common.” [cause of death]  [people with intellectual disabilities] “die younger,…

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#death#health#research
Trisomy 21 – A to Z Blogging Challenge
A to Z Blogging Challenge 2020 Advocacy Community Updates Down syndrome in the media Down syndrome organizations Health

Trisomy 21 – A to Z Blogging Challenge

By Stephanie
On April 23, 2020April 20, 2020

Trisomy 21 – a.k.a. Down syndrome. Let’s talk DS.

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#coronavirus#COVID-19#Global Down Syndrome Foundation#health#IDS#LuMind/IDSC#The Adult Down Syndrome Center
Debate Over Antidementia Drugs for Adults with Down Syndrome and Alzheimer’s Disease
Alzheimer's Disease Research

Debate Over Antidementia Drugs for Adults with Down Syndrome and Alzheimer’s Disease

By Stephanie
On March 18, 2020

In March 2018, 21 researchers published a study in the British Journal of Psychiatry called “Impact of cholinesterase inhibitors or memantine on survival in adults with Down syndrome and dementia: clinical cohort study.” The researchers noted that there have been few studies…

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#Alzheimer's disease#health#research
Got Milk?  Or Water, Lemonade, Fruit Juice Maybe?
Health National Down Syndrome Awareness Month 2019 Research

Got Milk? Or Water, Lemonade, Fruit Juice Maybe?

By Stephanie
On October 30, 2019October 16, 2019

You never know what you might learn in National Down Syndrome Awareness Month, IF you keep your eyes and mind open.

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#health#research#voice
New Cancer Screening Suggestions for People With Down Syndrome
Health National Down Syndrome Awareness Month 2019 Research

New Cancer Screening Suggestions for People With Down Syndrome

By Stephanie
On October 23, 2019March 13, 2020

Scientists say people with Down syndrome have different needs when it comes to cancer screening.

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#cancer#health#research
A to Z Blogging Challenge: Underprivileged
A to Z Blogging Challenge 2019 Advocacy Racial disparities Sheltered Workshops

A to Z Blogging Challenge: Underprivileged

By Stephanie
On April 24, 2019April 27, 2019

  If we say we advocate for all people with Down syndrome is that really true? How do we choose which topics to advocate for?

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#health#low income#racial disparities
April A to Z Blogging Challenge: Health
A to Z Blogging Challenge 2019 Advocacy Aging Alzheimer's Disease Caregiving Health

April A to Z Blogging Challenge: Health

By Stephanie
On April 9, 2019April 17, 2019

  Aging with Down syndrome creates new health challenges. Families are helping each other by sharing what they learn.

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#Alzheimer's disease#health#physicians#specialists
G is for Get Moving – A to Z Blogging Challenge
A to Z Blogging Challenge 2016 Health

G is for Get Moving – A to Z Blogging Challenge

By Stephanie
On April 8, 2016April 4, 2016

Research tells us that adults with Down syndrome typically do not get the recommended amount of exercise.  One way to get moving is with the popular dance fitness program called Zumba.  

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#exercise#fitness#health#health & wellbeing#Zumba

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  • Home
  • About Us
    • Strategic Planning
  • Justice For Ethan
    • The Civil Case – A Summary
    • Press Release – Ethan Saylor Memorial Film Festival
    • Ethan’s Law – The Movie
    • A Brief Summary of the Story
  • Blog
  • Count Us In!
    • Research: Why Does it Matter to You and Your Families?
  • Research Corner
    • Stress and Depression Linked to Onset of Cognitive Decline and Alzheimer’s Disease in People with Down Syndrome
    • Alzheimer’s Disease – Dr. Brian Chicoine
    • Health & Aging with Down syndrome
    • Vaccine targeting AD with Down syndrome
    • Debate Over Antidementia Drugs
    • All about the Down syndrome registry
  • Down Syndrome in Children’s Literature
    • Children’s Library