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The Road We've Shared

The Road We've Shared

The online community by and for parents and caregivers of adults who have Down syndrome

  • Home
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    • Strategic Planning
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    • The Civil Case – A Summary
    • Press Release – Ethan Saylor Memorial Film Festival
    • Ethan’s Law – The Movie
    • A Brief Summary of the Story
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  • Research Corner
    • Stress and Depression Linked to Onset of Cognitive Decline and Alzheimer’s Disease in People with Down Syndrome
    • Alzheimer’s Disease – Dr. Brian Chicoine
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    • Debate Over Antidementia Drugs
    • All about the Down syndrome registry
  • Down Syndrome in Children’s Literature
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Tag: social change

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I Can Be a Father (With Down Syndrome)
Health Parenting Research

I Can Be a Father (With Down Syndrome)

By Stephanie
On May 22, 2019May 28, 2019

Has your son who’s 5’ 4” (or shorter) told you that he’s going to be an NBA player? Has your beautiful daughter who has weak ankles and knees spoken to you about her dream of becoming a prima ballerina? Does your son…

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#infertility#parents#podcast#research#social change#social media
Ethan's Law Racial disparities

WWMLKD? – Civil Rights and Down Syndrome

By Stephanie
On January 19, 2015July 25, 2015

By: Stephanie Holland If he was here, what would Dr. Martin Luther King Jr. say and do about the current issues in our community? Today, as we celebrate Dr.King’s impact on our world, it’s a good time to reflect on our advocacy…

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#civil rights#Martin Luther King Jr.#non-violent action#social change#Tim Shriver
Ethan's Law

Md Commission on Inclusion – Ethan Saylor’s Legacy is About Much More than Training

By Stephanie
On January 8, 2015July 25, 2015

By: Stephanie Holland This is one time that I am happy to be proven wrong!  There was a great deal of “spirited debate” about Governor O’Malley’s response to Emma’s petition on Change.org.  Some of us were disappointed that he only committed to…

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#Md Commission on Inclusion#social change#Tim Shriver
Disability Services Sheltered Workshops

Remembering Willowbrook

By Stephanie
On May 9, 2014July 25, 2015

By Stephanie Holland  A recent article, Forgetting not an option: Horrors at Willowbrook State School remembered at annual CSI lecture caught my eye for two reasons: It brought back memories from when I first heard about the beginnings of deinstitutionalization, and I’ve recently been writing about…

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#disability history#social change#Willowbrook

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  • New Study: Detecting sleep apnea in adults with Down syndrome using WatchPAT
  • Unwanted: How a Mother Learned to Turn Shame, Grief, and Fear into Purpose, Passion, and Empowerment – A to Z Blogging Challenge
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  • Shut Away: When Down Syndrome Was a Life Sentence – A to Z Blogging Challenge
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  • Home
  • About Us
    • Strategic Planning
  • Justice For Ethan
    • The Civil Case – A Summary
    • Press Release – Ethan Saylor Memorial Film Festival
    • Ethan’s Law – The Movie
    • A Brief Summary of the Story
  • Blog
  • Count Us In!
    • Research: Why Does it Matter to You and Your Families?
  • Research Corner
    • Stress and Depression Linked to Onset of Cognitive Decline and Alzheimer’s Disease in People with Down Syndrome
    • Alzheimer’s Disease – Dr. Brian Chicoine
    • Health & Aging with Down syndrome
    • Vaccine targeting AD with Down syndrome
    • Debate Over Antidementia Drugs
    • All about the Down syndrome registry
  • Down Syndrome in Children’s Literature
    • Children’s Library