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The Road We've Shared

The Road We've Shared

The online community by and for parents and caregivers of adults who have Down syndrome

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Category: Community Updates

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Mom Writes New Book – The Up Side Of Downs
Community Updates Down syndrome in the media

Mom Writes New Book – The Up Side Of Downs

By Stephanie
On May 5, 2021May 5, 2021

Lisa Palermo Matto from Syracuse, NY has published a book of stories about her daughter, Marlee, who has Down syndrome.

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#Down syndrome in the media#literature#Syracuse#Syracuse University's InclusiveU
#CountUsIn #UnequalAwareness #DsandRace
Community Updates Racial disparities

#CountUsIn #UnequalAwareness #DsandRace

By Stephanie
On July 21, 2020

Six years ago, a friend of mine sent me a newspaper article that started me on a quest.  The BLM movement has finally gotten the object of my obsession some traction.

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#health disparities#race#research
Trisomy 21 – A to Z Blogging Challenge
A to Z Blogging Challenge 2020 Advocacy Community Updates Down syndrome in the media Down syndrome organizations Health

Trisomy 21 – A to Z Blogging Challenge

By Stephanie
On April 23, 2020April 20, 2020

Trisomy 21 – a.k.a. Down syndrome. Let’s talk DS.

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#coronavirus#COVID-19#Global Down Syndrome Foundation#health#IDS#LuMind/IDSC#The Adult Down Syndrome Center
Economic Impact Payments and SSI
Advocacy Community Updates

Economic Impact Payments and SSI

By Stephanie
On March 30, 2020March 30, 2020

Safety first. In addition to the medical questions, we’re watching the news regarding “economic impact payments.”

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#Coronavirus Disease#COVID-19#SSI
October On The Road 321 Proud
Community Updates National Down Syndrome Awareness Month 2019

October On The Road 321 Proud

By Stephanie
On September 30, 2019September 29, 2019

October is a big month in our community! Here’s some of what’s going on around here. #321Proud

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##321Proud##BornThisWay#Black Day - The Monster Rock Band#social media#The Road Scholars
Story Club: Let’s Read a Book About Down Syndrome
Community Updates Down syndrome in the media

Story Club: Let’s Read a Book About Down Syndrome

By Stephanie
On May 12, 2018May 13, 2018

Over at our Story Club site, we host a virtual book club where participants read books about Down syndrome. We’re getting ready to start another book and we want your input.

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#books#memoir#parents#social issues#Story Club
ShondaLand Recognizes Disability Rights
Community Updates

ShondaLand Recognizes Disability Rights

By Stephanie
On February 5, 2017

Fans of Scandal may have noticed a quick nod to the disability community in the latest episode. We’re used to seeing Olivia (Kerry Washington) advise the President and presidential candidates – it’s what she does. But this week, (Season 6, episode 2,…

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#disability rights#Kerry Washington#Scandal#Shonda Rhimes
My Thoughts on the Ethan Saylor Memorial Film Festival
Community Updates Down syndrome in the media Ethan's Law Film Festival

My Thoughts on the Ethan Saylor Memorial Film Festival

By Stephanie
On January 20, 2017

As my mind gets out of constant planning mode, and back into the everyday groove, I wanted to take a moment and share a few thoughts on last weekend’s festivities.

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Announcing! The Ethan Saylor Memorial Film Festival
Community Updates Ethan's Law Film Festival

Announcing! The Ethan Saylor Memorial Film Festival

By Stephanie
On October 25, 2016October 25, 2016

We are excited to announce that The Road We’ve Shared and The International Down Syndrome Coalition (IDSC) are hosting the first annual Ethan Saylor Memorial Film Festival!

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##JusticeForEthan#Dakota's Pride 2.0#Ethan Saylor#Ethan's Law#Kelly's Hollywood#Learning to Drive#Spring Break Zombie Massacre
Happy Mothers Day to Those Who Cut The Road
Community Updates Parenting

Happy Mothers Day to Those Who Cut The Road

By Stephanie
On May 9, 2016May 9, 2016

While we’re celebrating our own families today, I’d like to take a moment and wish a Happy Mother’s Day to a specific group of strangers – the Moms who came before us. No matter how old our children with Down syndrome are,…

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#Mother's Day#stories

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  • New Study: Detecting sleep apnea in adults with Down syndrome using WatchPAT
  • Unwanted: How a Mother Learned to Turn Shame, Grief, and Fear into Purpose, Passion, and Empowerment – A to Z Blogging Challenge
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  • Home
  • About Us
    • Strategic Planning
  • Justice For Ethan
    • The Civil Case – A Summary
    • Press Release – Ethan Saylor Memorial Film Festival
    • Ethan’s Law – The Movie
    • A Brief Summary of the Story
  • Blog
  • Count Us In!
    • Research: Why Does it Matter to You and Your Families?
  • Research Corner
    • Stress and Depression Linked to Onset of Cognitive Decline and Alzheimer’s Disease in People with Down Syndrome
    • Alzheimer’s Disease – Dr. Brian Chicoine
    • Health & Aging with Down syndrome
    • Vaccine targeting AD with Down syndrome
    • Debate Over Antidementia Drugs
    • All about the Down syndrome registry
  • Down Syndrome in Children’s Literature
    • Children’s Library