Advocacy aimed at public policy initiatives have broad, long-term goals. “People with disabilities want to live, learn, work, pay taxes, and be productive and fully included in their communities.”
read moreAdvocacy aimed directly at obstetricians is common in the Down syndrome community. As the point of first contact between families and Down syndrome, how they see the condition is critical.
read moreAdvocacy and negotiation go hand in hand. Advocates need to understand the difference and be ready to use both approaches in different situations.
read moreOne of life’s milestones, something we all see as a normal life goal, is sometimes just out of reach for some of our adult children with Down syndrome. Marriage represents opportunities for advocacy in two different areas: the personal and the public.
read moreAs time goes by, language changes. Terms go in and out of favor. Some of the words we use today had totally different meanings in decades passed. The words we use to describe disabilities and the people who have them are no…
read moreAdvocacy around research is important, especially because Down syndrome is the least funded genetic condition by the National Institutes of Health (NIH).
read moreEmployment is a difficult subject in the Ds community. It is a reason for advocacy but it is also a source for heated, emotional debate within the community.
read moreOf all the tools a good advocate needs, information is the most important.
read moreAging with Down syndrome creates new health challenges. Families are helping each other by sharing what they learn.
read more“The power of one, if fearless and focused, is formidable, but the power of many working together is better.” – Gloria Macapagal Arroyo
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