Skip to content
  • Home
  • Justice for Ethan
  • About Us
  • Count Us In!
  • Blog
  • Research Corner
  • Down Syndrome in Children’s Literature
The Road We've Shared

The Road We've Shared

The online community by and for parents and caregivers of adults who have Down syndrome

  • Home
  • About Us
    • Strategic Planning
  • Justice For Ethan
    • The Civil Case – A Summary
    • Press Release – Ethan Saylor Memorial Film Festival
    • Ethan’s Law – The Movie
    • A Brief Summary of the Story
  • Blog
  • Count Us In!
    • Research: Why Does it Matter to You and Your Families?
  • Research Corner
    • Stress and Depression Linked to Onset of Cognitive Decline and Alzheimer’s Disease in People with Down Syndrome
    • Alzheimer’s Disease – Dr. Brian Chicoine
    • Health & Aging with Down syndrome
    • Vaccine targeting AD with Down syndrome
    • Debate Over Antidementia Drugs
    • All about the Down syndrome registry
  • Down Syndrome in Children’s Literature
    • Children’s Library

Category: Featured

  • Home
  • Featured
Would You or Your Loved One Want a Cure for Down syndrome?
Featured Research

Would You or Your Loved One Want a Cure for Down syndrome?

By Stephanie
On January 10, 2020March 21, 2020

A new study published in the American Journal on Intellectual  and Developmental Disabilities asks parents how they feel about methods of mitigating or preventing symptoms of Down syndrome.

read more
#cure#research
New Research Funding Supports ONE Study Aimed At Racial Disparities
Featured National Down Syndrome Awareness Month 2019 Racial disparities Research

New Research Funding Supports ONE Study Aimed At Racial Disparities

By Stephanie
On October 14, 2019March 21, 2020

New INCLUDE funding helps (in a round-about way) address racial health disparities in the Down syndrome community.

read more
#disparities#race#research
A to Z Blogging Challenge: Vulnerability
A to Z Blogging Challenge 2019 Advocacy Featured Legal Issues Resources

A to Z Blogging Challenge: Vulnerability

By Stephanie
On April 25, 2019March 21, 2020

“Individuals with I/DD are significantly more likely to be victimized (at least two times more likely for violent crimes and four to ten times for abuse and other crimes)…,”

read more
#abuse#court#law#NCCJD#police
B is for Black Day Band – A to Z Blogging Challenge
A to Z Blogging Challenge 2016 Featured

B is for Black Day Band – A to Z Blogging Challenge

By Mardra Sikora
On April 2, 2016March 21, 2020

Marcus Sikora, a young man with Down syndrome is the lead vocalist and co-writer of this song, “We are the Band (Black Day!)” which was inspired by/written with his book, Black Day: The Monster Rock Band. Marcus and Quinn Sikora co-wrote the…

read more
My Top 15 Moments of Born This Way Season 1
Advocacy Down syndrome in the media Featured

My Top 15 Moments of Born This Way Season 1

By Stephanie
On January 18, 2016March 21, 2020

I watched the first six episodes of Born This Way with excitement. In Season 1, there were so many great moments, teachable moments, moments that made me laugh, cry, and feel grateful to be part of this amazing community that we belong to. Here’s…

read more
##BornThisWay
Health in Adults who have Down syndrome – 5 Areas of Concern
Aging Featured Health Research

Health in Adults who have Down syndrome – 5 Areas of Concern

By Stephanie
On November 4, 2014March 21, 2020

  Research summary by Stephanie Holland Lack of yearly physical exams / limited access to care: Research suggests (1) that primary care physicians may be able to respond to complaints, but may not be completing much needed preventative medicine options.  Some doctors…

read more

Archives

Categories

#AtoZChallenge 2022 alternative badge

Check out our designs on Redbubble!

The Road We've Shared designs on Redbubble

Latest Blogs

  • New Study: Detecting sleep apnea in adults with Down syndrome using WatchPAT
  • Unwanted: How a Mother Learned to Turn Shame, Grief, and Fear into Purpose, Passion, and Empowerment – A to Z Blogging Challenge
  • The Eternal Son – A to Z Blogging Challenge
  • Shut Away: When Down Syndrome Was a Life Sentence – A to Z Blogging Challenge
  • Reasons to Smile: Celebrating People Living with Down Syndrome – A to Z Blogging Challenge

Enter your email address:

Delivered by FeedBurner

Top
Tweets by The Road We've Shared
#AtoZChallenge 2021 badge

Tags

#321Proud #AprilAtoZ #AtoZChallenge #BornThisWay #DSAM19 #TRoadWS advocacy Alzheimer's disease art Black Day - The Monster Rock Band Born This Way Born this Way on A&E caregiving Chris Burke Connor Long cooking dance Disability services documentary DOWNs Town Mall Ethan Saylor exercise federal legislation giveaway guardianship health institutions jobs John Tucker Just Joshin' Ya Mardra Sikora marriage music musicals NDSC nutrition parenting racial disparities research romantic relationships social media WDSD World Wrestling Entertainment wrestling WWE

Copyright © 2023 The Road We've Shared - WordPress Theme : By Sparkle Themes

  • Home
  • About Us
    • Strategic Planning
  • Justice For Ethan
    • The Civil Case – A Summary
    • Press Release – Ethan Saylor Memorial Film Festival
    • Ethan’s Law – The Movie
    • A Brief Summary of the Story
  • Blog
  • Count Us In!
    • Research: Why Does it Matter to You and Your Families?
  • Research Corner
    • Stress and Depression Linked to Onset of Cognitive Decline and Alzheimer’s Disease in People with Down Syndrome
    • Alzheimer’s Disease – Dr. Brian Chicoine
    • Health & Aging with Down syndrome
    • Vaccine targeting AD with Down syndrome
    • Debate Over Antidementia Drugs
    • All about the Down syndrome registry
  • Down Syndrome in Children’s Literature
    • Children’s Library