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The Road We've Shared

The Road We've Shared

The online community by and for parents and caregivers of adults who have Down syndrome

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Tag: siblings

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Beauty Exposed: Captivating stories of life with siblings who have Down syndrome – A to Z Blogging Challenge
A to Z Blogging Challenge 2022

Beauty Exposed: Captivating stories of life with siblings who have Down syndrome – A to Z Blogging Challenge

By Stephanie
On April 2, 2022April 1, 2022

Beauty Exposed is from the perspective of siblings to people who have Down syndrome. These are often some of the most significant relationships our loved ones have.   This one is on my ‘to read’ list.  I just got my copy this week….

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#siblings
Special Brothers and Sisters: Stories and Tips for Siblings of Children with a Disability or Serious Illness
Uncategorized

Special Brothers and Sisters: Stories and Tips for Siblings of Children with a Disability or Serious Illness

By Stephanie
On May 23, 2021

Special Brothers and Sisters is a collection of real-life accounts from the brothers and sisters of children with special needs, disability or serious illness, ranging in age from 3 to 18 years. They explain, in their own words, what it’s like to…

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#siblings
A to Z Blogging Challenge: Responsibility
A to Z Blogging Challenge 2019 Advocacy Caregiving Legal Issues

A to Z Blogging Challenge: Responsibility

By Stephanie
On April 20, 2019April 22, 2019

  “Am I my brother’s keeper?” or “He ain’t heavy, he’s my brother.”

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#guardianship#siblings
Parenting

“Not Me” – When My Son With Down Syndrome Feels Left Behind

By Stephanie
On June 24, 2016June 24, 2016

My son Joshua has two “brothers by another mother” who he loves dearly. This picture was taken at the celebration / vow renewal of his youngest brother (left), Today, the middle brother, (right) got married . Josh recorded a short message for his brother that…

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#marriage#siblings

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  • New Study: Detecting sleep apnea in adults with Down syndrome using WatchPAT
  • Unwanted: How a Mother Learned to Turn Shame, Grief, and Fear into Purpose, Passion, and Empowerment – A to Z Blogging Challenge
  • The Eternal Son – A to Z Blogging Challenge
  • Shut Away: When Down Syndrome Was a Life Sentence – A to Z Blogging Challenge
  • Reasons to Smile: Celebrating People Living with Down Syndrome – A to Z Blogging Challenge

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  • Home
  • About Us
    • Strategic Planning
  • Justice For Ethan
    • The Civil Case – A Summary
    • Press Release – Ethan Saylor Memorial Film Festival
    • Ethan’s Law – The Movie
    • A Brief Summary of the Story
  • Blog
  • Count Us In!
    • Research: Why Does it Matter to You and Your Families?
  • Research Corner
    • Stress and Depression Linked to Onset of Cognitive Decline and Alzheimer’s Disease in People with Down Syndrome
    • Alzheimer’s Disease – Dr. Brian Chicoine
    • Health & Aging with Down syndrome
    • Vaccine targeting AD with Down syndrome
    • Debate Over Antidementia Drugs
    • All about the Down syndrome registry
  • Down Syndrome in Children’s Literature
    • Children’s Library