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The Road We've Shared

The Road We've Shared

The online community by and for parents and caregivers of adults who have Down syndrome

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Author: Mardra Sikora

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Advocacy Caregiving

A person with down syndrome can, in fact, be an introvert

By Mardra Sikora
On July 14, 2014February 15, 2016

This blog originally was posted by Grown Ups and Downs February 26, 2014. In my house a common argument is “Admit it, you’re an extravert.” “Nooo – you are the extravert!” “You are!” “No, You are!” And so on… This is because…

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Disability Services Parenting

Tailored to special body shapes and needs

By Mardra Sikora
On July 2, 2014February 15, 2016

In business there is a mantra among entrepreneurs: “Find a need and fill it.”  Karen Bowersox didn’t realize there was such a need as special clothes for people with Down syndrome, or even know that she was an entrepreneur until she tried to find clothes for…

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#Downs Designs
Parenting

Theatre Lovers Vacation – when you can’t make it to nyc…

By Mardra Sikora
On July 1, 2014February 15, 2016

Marcus and “Charlie Brown” from the Sioux City Community Theatre Production of You’re a Good Man, Charlie Brown Who needs New York city?! Marcus was introduced to Broadway, I mean the real Broadway, because I had a job that allowed me to…

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Community Updates Disability Services

About the Buddy Cruise… from a cruiser

By Mardra Sikora
On July 1, 2014February 15, 2016

This post is supplied by written by  HOLLY CAULFIELD a Cruiser from Buddy Cruises A special vacation at sea Shortly after I retired from 30 years as a special education teacher in the public school system in 2007, I heard about the Buddy…

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Sheltered Workshops

I guess it’s time for me jump into the sheltered workshops discussion

By Mardra Sikora
On June 27, 2014April 28, 2017

Ok – so I’m late to the party. I know. I’ve been watching and chewing and watching and reading and frankly I’m overwhelmed by 1) The conflicting output of regulations from state to state to federal to state 2) The many overgeneralizations about…

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Legal Issues Parenting

The joys of guardianship paperwork

By Mardra Sikora
On June 27, 2014February 15, 2016

Originally posted by Mardra of Grown Ups & Downs 1/15/2014 Yup folks, there it is, the 18 pages I have to complete within the next week. Sure, “the state” mailed them to me postmarked Dec 12th, but you see, to get the…

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#future planning
Down syndrome in the media

The Story of a Married couple with down syndrome

By Mardra Sikora
On June 27, 2014February 15, 2016

Originally posted in Feb 2014, part of The Road’s social theme. Monica and David, winner of several documentary film awards including Best Documentary at the Tribeca Film Festival. Have you heard of it?  The film follows Monica and David, both of whom have Down syndrome, from just…

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#relationships#romantic relationships#social
A to Z Blogging Challenge 2014

T IS FOR Truth- A TO Z BLOGGING CHALLENGE ON THE ROAD WE’VE SHARED

By Mardra Sikora
On April 23, 2014February 15, 2016

By: Mardra Sikora Truth changes like clay in the hands of its master.  “In childhood, I witnessed my grandfather’s truth about skin color, faith and fear. I waded through my mother’s denial and each truth it bore. Pluto…

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A to Z Blogging Challenge 2014

C is for changing the world - A to Z Blogging Challenge on The Road We’ve Shared

By Mardra Sikora
On April 3, 2014February 15, 2016

Story By: Mardra Sikora Changing the World: “The world is the same today as it has always been. There are good people and evil people. There always has been and there always will be.” What do you think? I both believe this to…

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Advocacy Community Updates

More than a story – a whole book!

By Mardra Sikora
On March 28, 2014February 15, 2016

Today we are sharing this story from Gary Bender who answers her own question: Did I really write a book? I started our blog, The Ordinary Life of an Extraordinary  Girl on August 26, 2009 with the following introduction, “Today  I decided I wanted to…

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#stories

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  • New Study: Detecting sleep apnea in adults with Down syndrome using WatchPAT
  • Unwanted: How a Mother Learned to Turn Shame, Grief, and Fear into Purpose, Passion, and Empowerment – A to Z Blogging Challenge
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  • Home
  • About Us
    • Strategic Planning
  • Justice For Ethan
    • The Civil Case – A Summary
    • Press Release – Ethan Saylor Memorial Film Festival
    • Ethan’s Law – The Movie
    • A Brief Summary of the Story
  • Blog
  • Count Us In!
    • Research: Why Does it Matter to You and Your Families?
  • Research Corner
    • Stress and Depression Linked to Onset of Cognitive Decline and Alzheimer’s Disease in People with Down Syndrome
    • Alzheimer’s Disease – Dr. Brian Chicoine
    • Health & Aging with Down syndrome
    • Vaccine targeting AD with Down syndrome
    • Debate Over Antidementia Drugs
    • All about the Down syndrome registry
  • Down Syndrome in Children’s Literature
    • Children’s Library