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The Road We've Shared

The Road We've Shared

The online community by and for parents and caregivers of adults who have Down syndrome

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Tag: planning

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Caregiving Resources

The Caregiver’s Notebook – A Review and Giveaway

By Stephanie
On December 7, 2014July 27, 2015

By: Stephanie Holland This year, we’ve been talking a lot about the joys and responsibilities of caregiving for adults who have Down syndrome.  We all need a little help every now and then, and I’ve been extremely grateful for the way people…

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#planning
Aging

Issue Monday – Aging with Down Syndrome

By Stephanie
On October 19, 2014October 13, 2015

By Stephanie Holland *Revised 10/13/15 One of the reasons we decided to create a separate community was our realization that parents and caregivers of adults have specific needs for information.  We’re past the stage of schools and education.  We’re lucky to be living…

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#guardianship#planning
Legal Issues

Letter of Intent

By Stephanie
On April 17, 2014July 25, 2015

By Stephanie Holland Since this month’s topic is legal issues, I wanted to start looking at what I’ve heard experts say is the most important “first step” in planning for the future – the Letter of Intent (LOI). From what I’ve read (I’m no…

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#planning

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  • New Study: Detecting sleep apnea in adults with Down syndrome using WatchPAT
  • Unwanted: How a Mother Learned to Turn Shame, Grief, and Fear into Purpose, Passion, and Empowerment – A to Z Blogging Challenge
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  • Home
  • About Us
    • Strategic Planning
  • Justice For Ethan
    • The Civil Case – A Summary
    • Press Release – Ethan Saylor Memorial Film Festival
    • Ethan’s Law – The Movie
    • A Brief Summary of the Story
  • Blog
  • Count Us In!
    • Research: Why Does it Matter to You and Your Families?
  • Research Corner
    • Stress and Depression Linked to Onset of Cognitive Decline and Alzheimer’s Disease in People with Down Syndrome
    • Alzheimer’s Disease – Dr. Brian Chicoine
    • Health & Aging with Down syndrome
    • Vaccine targeting AD with Down syndrome
    • Debate Over Antidementia Drugs
    • All about the Down syndrome registry
  • Down Syndrome in Children’s Literature
    • Children’s Library