By: Stephanie Holland

Yes, I’m a Sesame Street fan from way back, and today as I was looking at photos on my news feed, this song popped in my head and wouldn’t go away.  We’re so lucky to have social media to bring us together across great distances, but there’s nothing like meeting face to face!

In the Down syndrome community, we use the internet to form alliances and help each other reach goals.  There are so many things we can do to help make the lives of those we love better and richer.

Just about the only thing we can’t do on the internet is give each other a big hug to show how grateful we are for the work they do.

Face to Face

Since we started The Road, we’ve met some really great people online and we’ve had the opportunity to meet some of them face to face.   I was able to attend the NDSC conference in Indianapolis, and last week, Mardra went to the DSAIA conference in Las Vegas.  It was so great to see the “people in our neighborhood”!

THANK YOU to all the people who have supported us this far!

Building our Neighborhood

In our second year here on The Road, we’ll be working hard to meet more neighbors.

We have six projects that we’d like to open up to the community.  We’re currently forming volunteer groups to work on each project.  If you’re interested in helping out please let us know!


Keep the Momentum Going!

Our community may be small, but by working together we’ve accomplished a great deal in a short time.  We’ve gathered important resources, created relationships with some amazing people, and brought adult issues to the forefront of the larger Ds community discussions.

Also on our agenda for the coming months:

  • Legislation in the #JusticeForEthan movement
  • Expanding the list of resources for our community by partnering with 321eLearning
  • Raising funds to attend the NDSC conference in Phoenix
  • Expanding our neighborhood to include partnerships with the national groups for people with intellectual and developmental disabilities (i.e. Arc)

We’ll be discussing some of these topics during our session at the 321eConference this year. We hope you’ll join us!  Be sure to check out all of the fantastic sessions this year for parents and caregivers of adults!